Incontinence after TURBT

Hi Trikeman and welcome to the group. Sorry to hear you are having problems following your TURBT. Most people's bladders settle down  a week or two after the op, but there are exceptions. Have you had any medical advice? There is always a possibility of infection so may be worth while dropping a sample off at your local GP to check. Best wishes. 

Hi Rily, thanks for the advice. I have had a course of antibiotics and a recent sample shows no infection. My treatment on the whole wasn't the best. I had trainee a anesthetist and two trainee nurses. The surgeon had to intervene after the anesthetist failed five times to effect a spinal block. The trainee nurses took four attempts to successfully insert a cannula. As a result I have limited feeling in the sole of my right foot and weakness in my right leg as well as this weakness in my bladder muscles. I plan to bring these problems up with the urology team at my three month checkup. 

Trikeman. It sounds as though you had a rough time of it. We have seen on here before where sometimes the urethra is scarred by either the catheter or cystoscope causing leakages. Always best to keep your medical team updated. Do you have a CNS to talk to?. Best wishes.

Frankly personally I would not wait for your checkup, I would either be contacting PALS or a no-win, no-fee medical negligence solicitor about the collateral damage as this is really not funny. Damage to your nerves by the anaesthetist and or surgeon may have something to do with the inability to hold on as well as the rest, and I think a neuro-urologist if a solicitor can find one, should examine you. I know this is hassle, but wouldn't you wish someone had blown the whistle to avoid this happening?, - and you might save another patient worse by blowing the whistle.

Rily, thanks for the info I will call my CNS on Monday see if they can help. My urethra has had a previous rough time as I  had prostrate cancer treatment in 2014 and then Skin cancer in 2017. The big C seems to have a liking for me but having beaten it twice I plan to beat it again. Once again thanks for your help and information. Best wishes Trikeman

Denby, thanks for the advice I was considering contacting pals about the nerve damage etc as I have had two previous cancer treatments Prostate in 2014 then Skin cancer in 2017. Surgery for both with no problems and brilliant aftercare. I totally agree about other people suffering the same problems. I know people have to learn on the job but the intervention should have been much sooner. Best Wishes Trikeman

Hi Trikeman, Sorry to hear of your difficulties. I would definitely contact PALS and report what has happened. Also contact your CNS as soon as possible to get some help with the symptoms. At the 3 month check up the team's  focus will be searching for any reoccurrence. I'm not sure they are the people to investigate the issues you describe. Hope you get some support very soon. Best wishes x

Hi Herothedog, thanks for the support. I have put an email together to send to PALS outlining the failures of my TURBT. I will also contact my CNS as soon as I can. I am very reluctantly considering contacting a solicitor about medical negligence as I feel that the damage to the nerves in my spine will be permanent. Best wishes Trikeman

Dear Trikeman, my husband used to do insurance claims for personal injury. His suggestion to every potential claimant is this. Buy a lined school exercise book with margins. Each day that you can, mark the date in the margin and write down the pain, symptoms, problems they caused you etc. Even if you should happen to have a 'good' day, make a note, as you can then see how many or few these are. [And if eg you take a taxi because you feel unable to drive, firmly glue or staple the receipt to the page against the date and reason eg to go shopping.]. This method is best because it is impossible to 'rig' it at a later date [as a computer document could be] so lawyers can see it is a genuine chronological diary of your issues. If a solicitor is involved, give them copies, do not part with the original, too risky and stops you carrying on with it without a break in the meantime.

Should it unfortunately not get better, you will also find this diary gold dust evidence for claiming PIP. If interested in benefits [PIP is not means tested or taxed] sign up to benefitsandwork.co.uk 

Best wishes, Denby

Hi Denby, thanks for the information and advice. I have written everything down in a note book and will keep a dairy of all the good and bad days. Writing it all down has brought home just how shoddy my treatment was. As I have mentioned previously in this thread I have had cancer twice before and on both occasions the treatment was excellent with a very good outcome. Not unsurprisingly both these treatments where at different hospitals to my current one. I am reluctant to take legal action against the NHS as they have had a tough time but like you have said what if someone else suffers the same problems as I did or God forbid worse. Best wishes Trikeman