I was diagnosed at 26 which caused me great emotional devastation, my wife and young daughter were my only solace in dealing with my diagnosis, very supportive but still the thoughts of my daughter growing up with practically no memories of me made my depression and anxiety spiral downward. Being young and being so close death just feels so entirely unfair but it's just something that must be accepted because these things happen and it cannot be changed.
The cancer was low-grade superficial which was FANTASTIC news although BC has a very high recurrence rate so I've still had to have multiple painful surgeries along with that awful cystoscopey.
I'd like to know how many other young folks have been diagnosed with BC and how did you handle it? Have you have multiple surgeries? What was the full diagnosis of the cancer and do you have the bovine TB immunotherapy?
Just trying to find somebody to relate to, BC can be awful thing to deal with.
And to everybody else on sub I wish you the best of good luck.
God bless us all!
Hi and welcome to the group. It is unusual for someone of your age to have bladder cancer, but we are seeing more younger people with it. Most of us here will be older than you, but can relate to your treatment. Lots of varying types of treatment here. As regards flexible cystoscopies, I am up to about number 25 now. Not pleasant, but can be reassuring. Best wishes.
Hi rosem53 I was just diagnosed in October pt1 grade 3 ( 54 year old ) since then I’ve had 2 Turbts and completed my 1st BCG last Friday. Treatment not nice but bearable to reach your goal.After the initial shock I started to read everything I could on the subject and to be honest this site is brilliant put my mind at rest and feeling very positive for the future All the best I am sure you will get very good advice off the members on here Good luck
Hello rosem53.
Welcome to the group. Really sorry to read of your diagnosis. I'm afraid I can't claim to be young, as I was 50 years older than you when I was diagnosed last year with CiS cancer! I can only vaguely imagine how you must be feeling.
Many of us have been through some of what you are going through now. I've had 9 BCGs with only one "ouch" moment; I always say it's worse going to the dentist! I've had three cystoscopies (one under general anaesthetic) with one to come in February (Covid permitting). The flexible cystoscopy has a local anaesthetic which is surprisingly effective. I always take paracetamol before the procedure. The cystoscopy under GA was not painful afterwards; just very achy and with a lot of discomfort. Not pleasant but not dreadful; ongoing fatigue was my main side-effect. There are many in the group who have had many more treatments than I have and are going strong.
Get in some Robinsons Lemon Barley Water. Recommended by someone in the group for getting rid of debris and cleaning out the system. Makes drinking water a lot more pleasant. I try to drink 2 litres a day; though we are only told to do that after procedures,
My psychologist says that being positive is more likely to lead to a better outcome. Difficult sometimes, especially at the beginning. I try to find something each day to be thankful for.
I do hope you make the most of your time with your family - it may be much longer than you fear. You can always talk to a Macmillan nurse on the 'phone and your Cancer Nurse Specialist is likely to be a great support - as is the group.
All the best to you and your family. Keep in touch.
Gandulf.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007