Hi,
I was wondering if anyone has had a similar experience or info about the following things.
My grandad had nephrostomies (bags that collect urine from the kidneys. The urine doesnt flow into the bladder) placed due to low kidney function. so he no longer urinates the "normal way".
He had a TURBT about 2 weeks ago.
For about 10 days he did excrete blood "the normal way" i guess thats expected from what i've read. however since then, there hasnt been any blood or wee "the normal way" and its just urine in the nephrostomies.
For the last few days hes experienced urgency to pee, but obviously doesnt pee because he has nephrostomies. but after this feeling of urgency he gets a lot a lot of pain in his lower bladder. and it lasts for about 20 minutes (This is the area they expect the cancer to be. We actually dont know if its bladder or prostate yet)
Has anyone found a way to make the pain less painful?
He cant take ibuprofen due to his low kidney function and he reacts badly to morphine products including codeine. So hes only taking paracetamol.
Secondly, i read about how to look out for complications but they all relate to peeing, eg lots of blood in the urine, clots in the urine, pain when urinating, frequency etc etc
However if you dont urinate "the normal way" how do you know if any of that is happening? how do you know if theres a big clot or anything? How do you know if theres any issues in the bladder if nothing comes out of the bladder? you cant test for a urine infection or a bladder infection because there is no urine to test thats passed through the bladder.
Im worried we'll miss something important.
We have the number for a specialist nurse but they dont work on the weekends so weve had lots of questions building up. We will hopefully speak to them tomorrow.
Thank you
Hi and welcome to he community. Passing blood and blood clots about 2 weeks after a TURBT is normal as the scab breaks away from the wound and we would normally advise lots of water to flush things out, but obviously with the nephrostomies, this is different. I have no experience with nephrostomies, so unable to advise. Hopefully someone will be along to help. Whichever, you need to call the nurse for advice. I hope all goes well. Keep us posted. Best wishes.
Hi Na Aa. Thanks for the update on your grandfather. Good to know you got to speak to someone about it. I hope they sort out the pain meds for him. Best wishes.
