Why I'm struggling with things at the moment.

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If you have red my posts you will know my latest checkup revealed several tumours that have been removed. And all the stress and worry that goes along with setbacks like that. 

However having GA as I can't handle the flexible cystoscopy there was a complication this time and I had to be intubated to take over my breathing. This meant being pretty sore from that process a tight chest and pain in my lungs every time I coughed, sore throat etc. I think it has really hit hard how serious this could have been. That has mostly subsided now thankfully after a couple of days. 

They also think I have sleep apnea which is why they had to intubate me so now need to deal with that on top of everything else. It just feels like everything Is going from bad to worse at the moment. 

And sleep apnea is a problem for me with my job more so than some jobs so there is also that worry and uncertainty of how I'm going to manage if I can't do my job. 

I know it's a lot of info but it's just how I'm feeling at the moment, I thought I had a fairly good handle on things and mostly so but this has been a big setback. 

So yeah just more venting really I'm contacting my Cancer Champion today to arrange an appointment to start the ball rolling on that but dread the possible outcomes. I score 4 points for sleep apnea out of 8 and they seem adamant it is sleep apnea that has caused these issues. My sleep isn't good and I've probably been ignoring things for too long just little things.

And yes I know people go through much worse and are in a much worse situation that me so I do take solace in the fact it could be much worse. It just feels like a lot to deal with at the moment in top of the recent not so good news.

And I probably have brought a lot of this on myself by eating poorly and not losing weight etc, but I do lack the motivation to change things and that is down to me 100%. But it's hard when you are stuck in a rut you can't seem to get out of. 

Sorry long winded post again. 

 

  • Hi Simon,I hope your cancer champion can help.Have you had any sleep studies done ? Jane 

  • Not as yet I've got an appointment for next Monday to be reviewed by a clinician to see what steps next to take for the possible sleep apnea. Obviously that is something I now need to speak to work about just to add to the list of ever growing problems. So I hope it turns out not to be the case. DVLA guidance is rubbish mind and telling. DVLA anything can be a worlds of problems and getting a decision reversed is not an easy task with them. 

    I will need to speak to work about it and see what they have to say about it. But they will likely inform DVLA if I don't anyway. 

    ________________

    My name is Simon. But Si is also fine, in fact you can call me anything you like it’s only a name after all Joy

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • I hope things improve for you and you are able to get some help/guidance with the sleep problem.Sorry that you are having a rough time of it.Love Jane