Just read a very interesting article in Posability magazine. By Mik Scarlet. Dec/Jan issue, page 33. In short he discovered that his troublesome UTIs were down to scarring of the urethra ["water pipe" as our consultant insists on calling it] directly caused by forceful catheterisations over the years. The scarring was providing a foothold for the bugs no matter what he did by way of cranberry juice etc and resisted very strong antibiotics too.
Denby
Hi Denby. Yes, we have seen it here over the years where people who have repeated catheterisations are more prone to UTIs. Plenty of water is the usual advice to try and keep things flushed out and prevent bacteria developing. I hope Mr. D is feeling better. Best wishes.
Hi, I can't remember that he did say. I believe thinner catheters are made, I don't know if leakage around would become a problem if thinner ones were used. Could ask GP/hosp for anaesthetic gel for insertion, might help?
Also, a senior nurse once told us that once pain nerves start to fire, it is hard to calm them down-they become irritable. She said therefore it is better to accept taking pain relief medicine before it gets really bad than wait until it is. So you could approach medics for something strong short term to try to achieve the calming, then use moderate pain relief at the slightest recurrence. Does that make sense?
Have you got him on [always check with your friendly pharmacist] cranberry tablets, and drinking Robinson's Lemon Barley Water suitably diluted? Just things that help dispel bugs. Some people find certain foods produce irritant urine, eg citrus, tomatoes, it can vary what from person to person.
There are herbal anti inflammatories too, again always check, eg turmeric, devil's claw. Don't know if they would help if it is chronic soreness rather than infection.
Be interesting for all readers to hear if anything helps.
Best wishes, Denby
I'm not sure that a change from 12 to 14 would be an issue. That's still quite narrow compared with the indwelling catheter I had post RC. I have to self cath an actually prefer 14 to 12, as they are less 'pointy' & gives a better flow of urine.
Certainly agree with tackling pain before it gets a hold. I wonder if it's neurological rather than UTI for BaggyEyes' father?
I've always had UTI's right from the very beginning so there wouldn't have been any or very much scar tissue at that time. I put it partly down to the filthy hospitals ... Although my Urology nurse told me in the early days that I had one of those bladders that just didn't like to be messed with, I think she was right as I appear to have a very different experience from those that are jogging ... after a few days of having the TURBT.
My new urologist did give me antibiotics after my last TURBT & told me to take them immediately, along with paracetamol & Codeine, it certainly helped as I can't see the sense in suffering. My urethra ached so badly that I didn't want to go to the toilet, & the pain was there until I went to the toilet again which was just 10 mins later, it was never ending & unnecessary pain with no sleep.
I'm now on the Lemon Barley Water denby, & have been guzzling away since I had my Epirubicin on Monday. Hopefully it'll keep any UTI away. Thanks for that tip.
Just wanted to say a huge big Thank You to everyone that responded to me. I really do appreciate it. I did manage to find Mik Scarlet's article and it did mention that his final option was for surgery to remove the scar tissue although I have not seen an article since then to say how successful it had been. Went out and bought Dad some Lemon Barley water so we will see how that goes, although upping his Longtec tablets appears to be working. He did do a urine sample yesterday that came back with nitrates and blood in it and coincided with a bout where he just flopped in his chair and couldn't move and was not very lucid. Doctor rang back and put him on some anti-biotics for a water infection. I begin to wonder whether all the tablets he is taking are battling one another. Have to say his GP Doctor has been wonderful, not so great the Urology Consultants.
It's just so reassuring that we can get advice and support from fellow "travellers" along this path. So thank you again.
Being not very lucid is almost a cert for a UTI in older folk. Don't know the mechanism but it certainly used to get my late Mum that way.
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