I have 11 sessions to go last camera check was all clear but I am finding it hard to have a good night sleep due to hot sweats I have another two sessions to have this year
Hello I was told that I have malt lymphoma rather than 'at least' stage 3 bladder cancer Could there be a mistake? Would histology make a mistake? Do biopsies get checked by more than one person?
Hi. I was never told, but then again I never asked, (will now though), why, as someone with aggressive NMIBC I was not a candidate for a cystectomy. The only way to permanently eradicate bladder cancer, to stop it in its tracks from ever returning, is...
Hello everyone of you lovely people. Flexi is clear, just showing inflammation. Urine sent for cytology, but the CNS is confident all looks fine . Thanks all for your support as usual, cant do this without you . Heart rate was 110 while they were doing...
Evening everyone hope you are all well just thought I’d pop on and say Hello and a catch up really pleased to see some positive results for those who have had a flexi lately Angela and BicycleGirl know you faced a few hiccups lately so great news for...
Hi, wonder if anyone has experience of pain and bleeding post procedures? My husband has non invasive bladder cancer in the bladder and prostatic urethra, a TURBT with mitomycin wash led to pain and infections and retention, once that was OK, the TURP...
Hi, just had my regular Cystoscopy check and pleased to report its clear. Next one is December and if clear will be followed by my last 3 (of 18) BCG sessions. So far clear for 17 months and no recurrence since BCG treatment. I can breathe and go on...
Is it okay for me to take Paracetamol to relieve BCG discomfort several hours after release of BCG.
My mum has had 3 rounds of Padcev and Keytruda. Can anyone tell me when and if you started to feel a bit better. I can’t see much improvement at the moment. I’m not sure if it’s the treatment making her unwell or the cancer as she was poorly before she...
I had a follow-up cystoscopy last month [after 9 doses of BCG]. The doctor found a 5 mm papillary lesion in the bladder which looked remarkably like a recurrent cancer. He suggested TULA and was certain it is a recurrence. I as the patient disagreed and...
