BCG treatment T1gd3with CIS

Hi Minie, firstly sorry that you’re here with us but welcome to the group…I did have two TURBTS before I started my BCG journey..

we are a friendly group so ask any questions and someone will be along to answer for you…im also on a 3 year plan…I think I’m due to have 27BCGS… but my CNS tells me it’s all about how you cope with it…

Nigel xx

Hi Minie,

Welcome to this friendly forum, but sorry to hear about your diagnosis.

It's very common to have two TURBTs but might not always be needed. I was told I needed a second TURBT as my first results were inconclusive and they needed to go back in.

It's good to hear that you've got the BCG induction course done.

I had my first TURBT in Dec 2022 and I was diagnosed with g3pta. 

I had biopsies every three months to begin with which are now at 6 Monthly intervals.

There are many friendly people on this forum with a plethora of experience, so any questions please ask away.

I can't offer any assistance with regards to the back pain, but hopefully you will get some answers soon.

Take care.

Trevor 

Sounds like your first 6 sessions went OK. I was 56 when diagnosed (taG3) and opted for surgery instead of BCG, but we each have to make the decision that suits our priorities and situation. It is usually life time follow up because BC is highly recurrent and tends to progress. Hence the treatment to deter that happening. Hope all continues well for you, but you will see from people here, life goes on well without a bladder!

Hi Minnie,

I'm a man of 54 and I have just received the same diagnosis T1 G3 CIS and just about to go in for my second TURBT in a few days and then start the BCG.

At first they said i was going straight to BGC but now i'm having a 2nd TURBT. Perhaps its to do with their level of confidence of the initial diagnosis.

Its great that they didn't see any tumours in your cyscospy and hope when the results come in its more good news for you!

I've also had some back pain on and off.

Hi Minie321,

Can't help re BCG mine was dealt with by bladder removal but lower back pain has been my constant companion for years (now 73).  I suggest you try lying on the floor,  knees bent, book under head so that nose points straight up. Relax all muscles and let your back sink into the floor. Stay there for as long as you can. (You may have to wriggle into lengthening your spine as it relaxes.)

This works for most lower back pain caused by bones and tight muscles. If pain is very bad, try lying on floor , book as above, against a sofa or chair so legs lie on the seat and you are in a  in a z shape. This forces lower back to relax quickly.