UTI-like symptoms after Mitomycin

 Chromedome . Hi Matt, and a welcome from me. We know MMC can cause various side effects. We also know that catheters can cause UTIs, and so always best to get checked out. Where I live the local pharmacists can check for UTIs and can prescribe antibiotics. Usually a 24 hour turnaround. Best wishes.

Thanks! I’ve emailed my urology nurse, and will check at the pharmacy tomorrow morning.

I was given one dose of Mitomycin after the TURBT. It caused severe cystitis, when the catheter was clamped. I was writhing in agony for about 1 hour. Subsequently, I continued with blood in urine and severe pain on passing urine, which gradually settled. I also had severe lethargy and flu like symptoms. Then I had a cystoscopy three weeks later to remove my Double J stent. This showed intense inflammation below the resection site along with two inflammatory nodules. Two weeks later, I had severe haematuria with clots, pain etc etc. which lasted two days. A week later I had a rigid cystoscopy where they found a large area of ulceration below the original resection site which was bleeding with clots. No sign of cancer. It all quickly settled down after that and I was able to complete my BCG inductive treatment. Recent cystoscopy and bladder biopsy showed granulomas due to BCG but no cancer. Mitomycin is like Domestos for cancer cells. It is supposed to reduce recurrence by 40%, but this comes at a cost. 

Hiya, what is this cost? One month on I've been fine but now experiencing cramping tjat lasts hours. Maybe that's the consequence for me...

The cost is the severe side effects, which seems to me to be the mother and father of all the side effects of BCG. 

Also, the side effects can appear early and also later; in my case five weeks after it was instilled. It may be that, it does that if there is a raw area in bladder, when it is put in.