Mums brother my uncle

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Has just been diagnosed with what I assume is grade 3 NMIBC she said stage 3 but as far as I can tell it's not spread or anything. I know he was struggling to urinate and there was a blockage presumably from the cancer cells. 

Not getting a lot of info and they said immunotherapy most likely route which I think will be BCG? He is in his 80's. So surgery is an unlikely option. 

Like I said only getting snippets of info and I know from mine how hard it is yo hear all these things and grading etc and be confused as to what all of it means. 

So here hoping for him they can resolve it and also he doesn't have many side effects. 

Just sharing really but feel free to give any ideas or thoughts based on the little info I've got so far. 

  • Macmillan and Cancer Reasearh have very helpful free online booklets to help get your head around NMIBC, ther type and grading and treatment options.

    If it's non muscle invasive, it could be T1 so not spread beyond the bladder lining but the type of cancer cells make it a Grade 3 and more risky. The BCG immunotherapy route seems to be a well trod path and there is much information about it. 

    Are they also scanning his prostrate? 

    If you have a Maggie's nearby, they are also very helpful to pop in for a general chat about a whole range of things in person which could be helpful with your dad. 

    Very best wishes.

  • Hi  .It's always difficult to comment when there is limited information. Stage 3 is muscle invasive so this could be confused with grade 3 if it is NIMBC. When you have the full story things will become clearer. Best wishes.

    Best wishes to All,   rily.

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  • I'm fairly au fait with things myaelf having had grade 2 NMIBC myself and am currently clear and down to 6 monthly checks. 

    But thanks for the reply just wondering what other people's thoughts are given I only know snippets and like I say from what my mum has been told by his daughter it sounds again a little muddled up, saying he's stage 3 when I think they mean grade 3, I know when I heard the words and grading I feared much worse than it was and has been for me, not a walk in the park as many will attest to on here as I had a few setbacks and some miserable times during my journey so far. 

    I had spoken to him about going for his cystoscopy before and now he has his results, I also know how hard it is dealing with family who think they are helping but often make it harder to deal with as in my case, I had already told him about here and Macmillan for assistance last time we spoke about it. 

    He did say he would let me know his results when he got them but hasn't, but tbh I havent seen him barely since I was a kid, apart from a couple of funerals over the years so we are not particularly close.

    I was supposed to be taking my mum to see him for a day soon as he keeps saying he'd like to see me since my mum told him about my cancer but he always seems too busy when we try to arrange something. 

    I've offered to be a phone call away for a chat or for advice etc but it may well be that he does not really want to speak to me about it. 

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  • Yeah I said that much to my mum, she says his daughter said stage 3 but I think she means grade 3 as far as we can tell it's not muscle invasive bu yes maybe things will become clearer in time. 

    Either way I hope he gets the care and support he receives and gets through it all. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • OK. My appologies. I meant we'll and noted. 

    • No bother bud all replies are always welcome on my posts. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.