Sorry me again.. how big is too big and how many?

Hi Pea87 . No need to apologise for anything here. We understand how worrying the early days of not knowing can be. The size of a tumour is not as important as as to how deep it has gone and the type of cell. Your dad will not know this until results of biopsies are in after his TURBT. Macmillan have produced some information on BC which you can see if you click HERE . Best wishes.

Thanks so much Rily xx

rily is correct. When I first heard that my bladder lesion (which is a word used to cover any abnormal growth) was 7cm (70mm) I was horrified. This was back in 2017. In my case, radiotherapy in 2017 then two TURBTs in 2018 took care of most of the symptoms. I was then signed off for palliative care in early 2019. More alarm!! However, what they meant was that symptoms would be treated as and when they appeared so that pain or bleeding could be kept under reasonable control whilst continuing to live independently, driving etc.. It is now 2026 and I'm still more or less ok, just a urethral catheter to contend with, changed every 8-12 weeks or when blocked. Forum members did a superb job calming me down when I joined about 2 years ago. You and your dad should try to take each day as it comes. The medics will advise you of a treatment path tailored to your dad's detailed diagnosis after they've analysed test results and conferred with colleagues. The waiting can be unnerving but they will be lining up the required specialists and facilities so that a clear treatment plan can be put to you. Sometimes they will give you options. It is a lot to take in and you will find that treatment varies between patients. Different hospitals may approach the treatment in different ways - this is normal. Best of luck for a smooth and successful outcome.  Ray xx 

I had one, superficial, deemed small at 2.5 cm. That was picked up on pelvic ultrasound as a thickening of the bladder wall. Your Dad's results are amazingly precise for ultrasound! You can have one, or many, small high grade ones, large low grade ones and other combinations. I'm afraid that until they've had a closer look, removed the masses and done a biopsy, you won't know for sure what they are. That will be a few weeks wait after the TURBT.

Hi Pearl,

Everyone has given you good advice. I'll only add my view that the experts are the medics who will treat your dad so you will get the answer from them quite soon, once they have investigated and weighed up what they have found against their experience and current scientific knowledge. 

As others have said, size doesn't always matter, where it is, what type, your father's general health, possible treatments and his wishes are some other relevant factors.

All of us have faced this and please take away the fact that we are here and alive and, some of us, kicking despite it.

All the best,

Latestart

Hello Pea 

I had a 2cm so 20 mm was never told where they classed it on the size small medium or large a lot of it depends on it’s behaviour is it growing upward into the the empty space where urine collects or invading the layers beneath where it sits this is the crucial part people can have considerable size tumours that are only on the surface of the lining and grow upward and still be superficial 

Ste