Number 12 BCG treatment done

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Hi everyone 

so that’s my second maintenance course of BCG treatments done. Side effects were a bit worse but I know other people have it much rougher. My lovely CNS nurse said ‘it’s working’. Because of the high recurrence I hadn’t really thought about it that way so that got me through yesterday (as well as an obscene amount of lemon barley water and ibruprofen and paracetamol! Just had an alert to say next cystoscopy is 28th May. Does that sound too long to anyone?  I seem to have lost all common sense with regards to this bladder cancer!! Surprising I can still work and make decisions in a different context. Anyway love and strength and health to everyone. X

  • Hi Joyce,

    Well done on getting number 12 done..

    After the second maintenance course the time between BCGs goes to 6 Months (ISH)

    Wishing you all the best.

    Trevor 

  • Aw thanks Trevor. Good wishes to you x

  • The more you tell people the easier it gets to talk about it without the fear of talking about it. I've told no end of people that I would never have thought about telling such a personal problem to. 

    And no one should feel fearful of telling someone they have cancer it's nothing to be ashamed about or fearful of talking about. 

    Obviously everyone is different though so it's a personal choice, but if people don't know they can't support you and also can make people realise you have a lot going on in your life and cut you some slack. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Hi Joyce,It’s good to hear you have completed another course.Best wishes for the next cystoscopy.Love Jane xx

  • I have only told my two elderly aunts and regretted soon after because I keep getting sympathy calls, which is often depressing. Last thing I need at this stage is sympathy. It just increases my doom and gloom. 

  • I understand that, like I said it's a personal choice and everyone is different and everyone reacts differently to this kind of news. Maybe I'm lucky but everyone I've told has been supportive. Sometimes a little too supportive mind. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Your elderly aunts probably recall the bad old days when cancer was only whispered about behind one's hand. They're probably scared stiff of it, in case they ever get it. Just tell them you're having treatment and things are progressing normally. Hearing yourself say it might induce you to believe it too.

    These days treatments have come on a lot and it's all much more out in the open. Don't let their fears upset you. 

    My friends from literature classes, book groups and the like (mostly aged 60 to 80+) heard about my illness from the start - noticing my absence from our meetings. Some rang me, others offered support via cards flowers etc. All very comforting. Of course, many of them have personal experience of cancer (themselves and family) and have survived illness and bereavement.

    They were all very pleased to see me back, living as usual post treatment (and so am I).

    All the best,

    Latestart