Number 12 BCG treatment done

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Hi everyone 

so that’s my second maintenance course of BCG treatments done. Side effects were a bit worse but I know other people have it much rougher. My lovely CNS nurse said ‘it’s working’. Because of the high recurrence I hadn’t really thought about it that way so that got me through yesterday (as well as an obscene amount of lemon barley water and ibruprofen and paracetamol! Just had an alert to say next cystoscopy is 28th May. Does that sound too long to anyone?  I seem to have lost all common sense with regards to this bladder cancer!! Surprising I can still work and make decisions in a different context. Anyway love and strength and health to everyone. X

  • Hello Joyce, I've not had BCG treatment but I do read most of the posts on here. The general impression I have is that after each course the bladder needs a bit of time to settle before they check to see how the treatment is going. 28th May will soon arrive! The wait seems fairly typical to me but maybe there's an element of facility/resource loading as well. If you are concerned about the delay and have a contact within your medical team, perhaps give them a call or ask one of the MacMillan nurses using the contact number usually found if you scroll down to the green section below. Best wishes.  Ray x

  • Thank you Ray. Very reassuring x

  • Fingers crossed you get good results I've not had any BCG only Mitomycin and now Epirubicin treatment and for that I'm thankful as it's seems BCG can give people much more severe symptoms. Mind some people don't do well with either of those I've had as well, so again I'm fortunate that's for sure. 

    Well done for dealing with it all and I hope it really pays off for you. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Right back at you. You’re nearly finished this new round? Wishing you such a positive outcome x

  • Fingers crossed for me too but it will be what it will be, I can't alter it just have to deal with things whatever way it goes.

    Yes one last one next week it's gone so quickly like last time so that's good.

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Some of your posts have made me stronger as you separate all the anxious feelings with a large dose of reality. What will be will be. And that makes me stronger (occasionally Rofl) but it reminds me worrying is doing absolutely nothing x

  • Yep like I said I can't control what will happen so worrying unnecessarily does nothing to help, not always easy but I'm very much a realist, maybe a bad thing and sometimes a good thing. 

    Glad my comments help if they do that then it's all worthwhile.

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • They do help. Stops me drifting away into some fantasy land. You remind me of who I was before all this cancer stuff!! So thank you 

  • You are still the same person you were, this one thing doesn't define you. 

    I've even been known when people are at work say oh I've been unwell with a cold or stomach bug etc so had days off, say so what I've got cancer and still come to work Rofl

    The looks I get but it makes me smile and some do laugh and call me an idiot or similar, but it's true and puts things into perspective.

    But talking about it openly means I release a lot of the negative emotions regarding it, and it makes people talk about it rather than skirt the issue. 

    ________________

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • I’m sure you’re right but I still fear saying I’ve got cancer so not everyone knows. My work is about helping other people so I seem to feel I can’t show I need help too!! Anyway it is for it is. As you would say Rofl