Hubby had recent cystoscope which shows a new lesion after 3 previous clear tests following removal of tumour 2 years ago. We are devastated. We thought it had gone.
Now another Turbt in a couple of weeks time.
The thought of starting again is awful.
Any advice.?
I can understand your feelings as most of us on here can only too well. I'm so sorry to hear you are both going through it all again.
I've just had a bunch of biopsies done yesterday and have a catheter today which is causing me no end of problems.
Mine has been going on now since may last year and no sign of it going away as yet but we have to plod along and do what we are told and put up with the insides we face sadly. It's the cards we are dealt sadly.
Advice wise I don't really know what to say, you have some ideas already what to expect aka drink plenty avoid drinks that irritate the bladder etc. So not sure what else I can advise other than come here for help and even just to rant. Read my latest ramblings and rants in general discussion. It does help especially when it's people that have gone through the same or similar.
Friends and family can help too but I find it much easier to talk to people who can properly relate as in m y case all family (read as my lovely mother, she can't help herself I know) and friends want to do is help and be positive all the time about everything and I find that a bit tiresome after a while and just want to be let alone to get on with things.
Best of luck for the TURBT and hope it's good results after it's done.
________________
My name is Simon.
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Yeah we all know the shell shocked feeling all too well my darling. I hope he is doing ok with it as well, sometimes it's harder to talk to to people you care about but sharing is important, I've got to the point where i share it with anyone anytime even random strangers now, bit awkward at times but I've got so used to talking about it it just comes up without even thinking. Then I apologise to people for sharing so much
Remember if your old enough to know "it's good to talk" I'm not saying you are but I often fall nto a lots of generation gaps these days being ever closer to 50 when I sya something from memory lane to people whose heads it goes straight over as I dont realise how long ago some things are.
For me as well one of the biggest things that has ralt helped is coming on here and stalking to all these amazing huma beings who care and do whatever they can just make the load that little bit lighter if they can. We have some amazing peeps on here I'm so glad I joined here it and the people have been a massive help over the last year and half or so.
________________
My name is Simon.
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
Hello Layeney, Simon and Winkers have already replied, such is the friendly and supportive nature of the forum. We will all do our best to help you both through Round 2 of this sometimes persistent disease. Fortunately, the medical wizards can do a lot to treat bladder cancer so try to take each step as it comes, unwelcome as it all is with the appointments, hospital parking/transport and the 'waiting for results' which always feels like forever.
I've been on palliative care since radiotherapy in 2017 and two TURBTs in 2018 but still live a fairly normal, independent life in my own house, driving, shopping etc.. Getting old is probably more bother than my lingering cancer although it can sometimes get me down. The forum then comes to my rescue. Best wishes for a good outcome after the TURBT. Ray xx
Hi Layeney
My tumours were removed but came back a year later
I had 6 weekly doses of chemo (plus one during Turbt) directly into the bladder over a year ago and so far so good
Because we are checked regularly if it comes back it is caught early so it is much easier to treat
Hopefully Mr Layeney's will be treated successfully
Much Love Tina x
Thank you so much for replying. This page is really helping me tomcope and giving me hope.
Never a truer word said, if I'm honest I am totally fed up myself already with the constant visits to hospital, being touched up constantly and stuff shoved where it shouldn't, pain and ops and all the rest. But we know it's for the best and we manage to just get on with things.
But this place and the people help so so much as I've said time and time again.
________________
My name is Simon.
Much love and hope to everyone past future and present.
I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.
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