Several missed BCG treatments during the induction 6-week course – carry on? Or re-start from the beginning?

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Hello everyone. My partner (51m) has CIS. He had two BCG treatments on consecutive weeks - however due to small (tiny really) intermittent blood clots in his urine, he couldn’t have the third session and treatment was halted pending a cystoscopy. He had that yesterday - the Dr isn’t concerned about the clots and has said he can continue with the induction course (to have the remaining 4 treatments). The Dr also said the gap between when the last treatment was (30 September 2025) and when the next one will be isn’t a problem (appointments are being booked for the treatment to resume, so we don’t yet know when treatment three will be). 

I feel quite uncomfortable about the gap in his treatment and would have felt better if he could have just started again to have the full 6, week on week. I did ask the Dr why the gap in treatment was okay and he said – “in his experience it is okay”. I couldn’t get anything more than that.

Has anyone else experienced a gap of multiple weeks of missed treatments?

If so – how many weeks gap was there and did you carry on from where you left off or start the 6 sessions from the beginning?

I can’t find any guidance out there to say what should be done.

Thank you for taking the time. 

  • Hi  and welcome to the group although sorry to hear your concerns. I've not had BCG so not much help. I am sure someone with experience of this will be along to offer some help. Best wishes.

    Best wishes to All,   rily.

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  • Hi don’t worry, BCG is very effective but the body does not use a stopwatch a lot of the guidelines are ideals. After all it’s 6 induction doses because the drug came in a 6 pack Slight smile g3ta + cis heading for end of second year.

  • Thank you for taking the time to reply. I really appreciate it. 

  • I had three bcg treatments last yearafter i had a cis removed. Mine was then stopped due to a reaction in my eyes since then i have had cyscoptopies. Bladder camera ,every three months pus a ct scan so far so good no sign of a return of the cancer. And this routine will be my life for the next two years then a camera every 6 months for 3 years and then? I take each day as it comes but for now i am enjoying life without pain and visiting the loo every 10 to 30 mins. I also visit our local blythe house hospice on a thursday for the afternoon where i talk to others do some art drink as much coffeee and bisquits that you want . There are people trained to understand our needs and fear and they have been so kind and understanding and i cant thank them enough. Talk to Macmillan as they also helped me . Do Not let you or your husband go through this alone.