Hi!
My husband is in hospital for other medical reasons and was recovering but we’ve just been told he has bladder cancer. They removed some of the tumour, but not all. I we don’t know the stage or any details yet but just wanted to be in touch with people going through the same thing. I had cancer diagnosed last year and joined a forum and it was so helpful in so many ways.
Happyflower
Hi Happyflower ,
Welcome to this friendly forum, but sorry to hear about your husband's diagnosis.
Must have been quite a shock for you both.
Plenty of experience on here, so any questions please fire away.
I was diagnosed in Dec 2022, but had symptoms so kind of expected the outcome, or at least aware of what was going on a bit.
Also sorry to hear that you have also had a cancer diagnosis
This forum definitely helped me and still does and the people on here are so lovely.
Wishing you all the best.
Trevor
Hi Happyflower,Sorry to hear about your husband.Welcome to our friendly group.I hope you will find it helpful and supportive.Once your husband has the biopsy results back you will both know what treatment is available.It’s common to have a second TURBT procedure a few weeks after the first so don’t be alarmed if this happens.Feel free to ask any questions here there is usually someone who can answer.Best wishes Jane
Thank you everyone. So glad I signed up. When we know more my questions will keep coming I’m sure
Happyflower
Sorry to hear you have both been through cancer treatment. This forum is great for asking about stuff or even just learning new things that you can try out.
Whatever the doctors tell your husband about his illness someone here will have had the same or know someone who has.
All the best,
Latestart
We had devastating news tonight. My husband has sarcomatoid carcinoma. The mass is huge. No treatment only palliative care. He is not well enough to be eligible for removal of the bladder. I’m feeling lost. Just want him home now.
Happyflower
Happyflower, It is so difficult to find words which could help you both after you've both been knocked sideways by a diagnosis like that. Is your husband likely to recover enough from recent procedures to be allowed home? I do hope so, if that is what you both want. I also hope that you have been directed by the hospital towards appropriate support services which will enlighten you both on the path ahead while also addressing the mental shock and ways that may suit you both for helping with it. Palliative care varies enormously, influenced of course by your medical and personal needs. I was shocked to be put on palliative care in 2019, also being told that bladder removal was far too risky because of a heart condition. I was told that further TURBTs may be possible, even further radiotherapy despite the latter being initially out of the question. I do not have the same type of bladder cancer though. Try, as soon as you are able, to find out what palliative care options may be available. That may provide glimmers of reassurance if something can be done. My heart goes out to you. I'm sure we will all try our best to be as helpful and comforting as possible on the forum. The Macmillan help line may also provide a useful steer whilst you try to find your feet again. Much love, Ray xx
Thank you- yes I’m hoping there may be support to get him home and then changing a mind set that now it’s quality not quantity of life together for us now. I’m glad to hear that your diagnosis turned out to be a lot better than you had anticipated. Thank you for your supportive words and kindness.
Happyflower
Dear Happyflower and husband,
RayMK has said everything but I wanted to add that we are all thinking of you. This is your time to build some more memories together. I hope you can help one another through it. I watched my mother die of untreatable bladder cancer 50 years ago but was only 22 so had no idea how to help her and the rest of us face it. We all do the best we can. How I wish I'd asked about her life before us, for eample.
Much love,
Latestart
Sorry to hear about your mother but you were so young. Yes I’m hoping that we can make the most of the time we have left together.
Thankyou for your kind words
Happyflower
Thinking of you both Happyflower.I hope your husband is able to be home with you soon.Love Jane x
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