Hi all, I am feeling very frustrated and upset as I have had to cancel my BCG today. It is my own fault ! I am so frustrated with this Long Covid , I went to watch my son do his first half marathon on sunday , it was a long day and I was really struggling by tea time on sunday. I thought i would be ok if I rested , be fit for my appt. Not so , I had forgotten how bad this chronic condition can be! I have severe fatigue and pain in my legs and feet, my voice muscles have gone and my face has broken out in a rash. Its so upsetting . Feeling very low. It seems there is always a price to pay if I try to have a normal life !
Sorry for the venting, Its hard enough coping with the rollercoaster that is BCG , but this long covid is really testing my mettle . Thankyou for listening
Morning Angela, I did post a reply a few minutes ago but I think it disappeared into ether space. Mmmm. Sorry to hear you had to cancel your BCG instillation appointment. It must be so frustrating to live with long Covid. I got Covid during the pandemic but luckily experienced a mild dose with no after effects. Rest up and get well soon in order that you can continue your treatment. X
Garviv
Hi Angela.Hugs,I’m sorry you are feeling ill and have had to cancel.I don’t think many people appreciate how hard it is to navigate chronic ill health and all the ups and downs it brings.I hope you won’t have to wait long for your next treatment.Take care and rest up.Lots of love Jane xxx
Exactly that Jane, trying to navigate the unpredictability of each day.Its a lesson in living for each day, but a nightmare for planning a future event. I always feel like it stops me doing what i want to do . I know you are dealing with a chronic illness too and understand. It can be a very isolating condition.
I hope things are going well for you on the house front. Moving is very stressful , so you take very good care of yourself . sending you a hug right back xx
Much love Angela x
Hi Angela,It’s so hard planning what to do one day so you don’t suffer the next.I do understand your frustration even though our health problems are different.The house sale seems to be progressing at last.I may have to find someone to stay with temporarily if the sales can’t be co ordinated.I’m not thinking too far ahead but sorting,packing and writing lists.Take care Angela,lots of love Jane xx
Yes we had a lovely, long holiday in Lanzarote. A complete rest for both of us. Came back yesterday and feel guilty I feel really well but catching up with BC forum still hearing others who are not well, including you Angela. Looking forward to curry night on Friday after missing a couple whilst away. I will post you with the menu and musical choices. Flu and Covid injections on Saturday morning. X
Garviv
oh Garviv, you are bonkers for feeling guilty . I am delighted for you,that you had a wonderful long holiday , and are feeling really well. All of us on here would always wish that for each other. Our days will come , when we feel great and things are going well! So listen to me young fella, I order you to enjoy feeling great !!
I look forward to hearing about foodie friday . You are a joy and a great support to all on here. Take care my friend.
Much love Angela x
Hiya Angela
although sorry to read your not feeling well at the moment I can imagine it’s very frustrating dealing with two separate issues at once the main thing at this moment in time is to concentrate on your self in the comfort of your own home you’ve had your flexi check recently and know everything is ok with that issue so the BCG taking a back seat for a week needs to be done well you recover
take care get well soon
Ste
Hi Ste, thanks for this, you helped me get things in perspective. you are perfectly right about bcg taking a back seat for a week. I shall focus on rest, nutrition and catch up on a few good fillums ! Take care of yourself , sending you a hug
Much love Angela x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007