BCG IMMUNOTHERAPY

Hi Brusera6cb5b . Not had BCG myself so not the best person to answer but let me welcome you to the group. We do see a variety of different side effects of BCG so hopefully someone with personal experience will be along to offer some advice. Best wishes.

Hello Bruiser. I have not had BCG treatment but have had a lot of experience with catheters. Since late 2018 I've had at least 30 long term Foley catheters inserted, size16CH, replaced at 12 weeks or when blocked. Since April 2022, blockage has caused replacement at 2-5 weeks. BCG treatment catheters are also usually in the 14-16CH size range (male). From comments on here by those who have had this treatment, bladder irritation is a quite common side effect, making it important to keep your water intake regular and try for at least 2 litres per day (subject to advice given by your medical team). Although peeing can be uncomfortable, it is likely to be worse if your urine is concentrated. Regarding catheters, my experience varies considerably with each one. I do see rosé on replacement about once in every 4 procedures and rosé the day after replacement about once in every 5 procedures. Sometimes this can be quite strong (i.e. red!) and may last for 1-3 hours. Drinking extra water is the best remedy. I drink 3-4 litres per day. There is always a risk of infection with catheters. I've had sepsis once in 2018 (hospitalised for 5 days) and typically get lesser infections about 3 times per year, treated with antibiotics. Catheter insertion also varies considerably. Some go in with little or no difficulty. At other times my prostate puts up a fight for 5-15 minutes. A couple of times the nurse or doctor has had to give up and try a different size or different type of catheter. However, my experience may not be typical although yours may unfortunately be similar. Keep your medical team informed if you have concerns about symptoms during or after your BCG treatment. They will try to help or at least reassure you that the discomfort is temporary. My best wishes. Ray