Nephrostomy

Hi dake .Good to know you have a date with oncology. It does take away a bit of anxiety if you have a firm date. Not had a nephrostomy myself, but others here have and I am sure they will be along to help. I hope all goes well. Best wishes.

Hi Dake

Oy check these forums every couple of weeks - apologies for the delayed response. I had a nephrostomy in February; in my case I had a blockage in my left ureter 3 months after my cystectomy. The nephrostomy procedure is fairly simple & consultant led; carried out in a Radiology theatre enabling the consultant to view your inner organs. I had a local anaesthetic along with some ‘happy gas’ - the afternoon afterwards I felt as if everything was wonderful!

I didn’t stay in hospital - just a day procedure. I also had a stent / catheter tube installed through my ureter & exiting my body through my stoma. You will probably have the tube connecting to a bag outside your body. My procedure was slightly uncomfortable rather than painful - hope all goes well / has gone well.

Best wishes

Gareth

Thank you. Not had it yet. Starting radiotherapy on Monday. Not sure I can have it. Different opinions from 2 consultants. Problem is with my kidney.

Hi Dake, Firstly don't worry. I had a bilateral nephrostomy done 3 months ago. The consultant/registrar who did the procedure said the same thing to me. "Don't worry, it's simple plumbing we're doing" My tumour was lying over both ureter openings and was causing stress in both my kidneys, hence bilateral. He also inserted 2 stents in my ureters. The procedure took no more than 30-40 mins. More uncomfortable than painful. Some local anaesthetic and a bit of pain relief through a catheter in my hand and that was it. I had tubes coming out of my back into two bags for a few days. 3 or 4 days later after blood tests showed normal kidney function had resumed and I could pee ok, we lost the bags and the nephrostomy tubes were sealed off. I have  the dressings changed every 7-10 days. In my case , they want to leave the nephrostomies in for the duration of my chemo,  but youbcan discuss this with your urologist. Hope this helps 

Thanks. I just have tumour blocking one ureter causing stress to kidney. Your message is much appreciated.

You're welcome. Good luck! All will be well. 

Hope all goes well with you too.