Recent Diagnosis of G2PTa - Recurrence chances?

There is no right answer I'm afraid. 

I had my TURBT in 2024 in July. No recurrences until Jan 25 where I had a very small recurrence in my anterior urethra, and just at this most recent check up had several small ones removed and a large one one of them was in my prostate this time. 

That's how it's gone for me currently. 

Bearing in mind I had a check in Jan which found a small recurrence and then 5 months later several recurrences. 

So there really isn't much anyone can do to allay your fears of recurrences, but many people have clear Flexi checks and don't have recurrences as well. 

Many people also go on to get the all clear in time too. 

Sorry I know it doesn't seem helpful and I'm sure there are statistics on recurrence rates but I don't really see much point in using statistics if I'm honest. 

Thank you Simon and sorry to hear you've had recurrences. Have you just had continued TURBTs then, or have you had to have longer courses of chemo or BCG now? Also, what was your initial diagnosis, if you don't mind me asking? 

Many thanks for sharing and all the best with your treatment and recovery. 

James 

Hi James1066 . Just to echo Simon, it really is pot luck. BC is known for high recurrence rates but some people never have any. Because of the high recurrence rate we are monitored closely and any future return should be caught early and be easier to deal with. Best wishes.

I had the first small recurrence washed away with water irrigation whilst I had a rigid cystoscope, I was having cystoscopies under GA as I can't handle the flexi's well. 

Again similarly the latest rigid cystoscopy found these recurrences and were removed at the same time. 

I have not had the mitomycin wash as yet and no other treatment than removal and checks ups so far. 

Grade 2 (low) pTa 1cm tumour initially. 

Then a very small recurrence as in tiny ISH then several small ones and a large one, what large actually means as yet I don't know and will have more answers after the histology report and follow up appointment on the 25th July. 

Hi James 

I was diagnosed with PTAG2 also in February 2024 Tumour removed March 2024 and a follow up TURBT for biopsy’s in June after this I was then to commence surveillance checks both of which so far have been fine as Rily and Simon have both said unfortunately there is a good chance of recurrence the only thing I will say is keep a very close on yourself best of luck with your first check up Cystocopy 

Ste 

Hi Ste, 

Thanks so much for your response, did you have the chemo flush initially (I did)? And were you on a schedule of 3m cystoscopy, then 6m later and then annually from then on (that's my schedule)? 

Appreciate it,

Best wishes, 

James 

Hi James 

Yes I had the mitomycin wash yes and had my 3 month and 6 months checks so far 

Ste 

Thanks, that's good news that you're clear so far as I understand it's the point of highest risk. Does that mean you are on annual checks from now on? How big was your tumour if you don't mind me asking? 

James 

Hi James no not on annual until after my next six months one if all is well I’d be prepared for things to change slightly as time goes on and my tumour was 2cm 

Ste 

Hi James,

Welcome to this forum.

Good to hear you've had your tumor removed and it was low grade.

It's difficult to say about reoccurrence of course.

Mine was high grade (G3 tpa) , about 3cm but was non muscle invasive.

I had my 2nd TURBT in February 2023 and was put on BCG.

Not wishing to tempt fate, I've had no reoccurrence and my 3 Monthly checks go to 6 Monthly after my next one in August. Then annually after the following year.

Wishing you all the best.

Trevor