Recurring Upper ITIs After RC

Hi Leo. that really sounds miserable for you. I can't help, but just wishing things get better for you with the new meds. Best wishes.

Hi Leo,

Sorry to hear about your issues.

Can't offer any input, but hope you get things sorted soonest.

Trevor 

Hi Leo

I've never had any complications after my RC. I had plenty of uti's before before the turbt and surgery. What are the symptoms you are experiencing?

Best wishes 

Mark

Hi Mark, I had 3 with a high temp around 39C, back and abdominal pain, and great fatigue, plus nausea

3 trips to hospital with those.

recently two episodes that were more or less asymptomatic.

bugg@r.. 

hi Leo, sorry to hear this is recurring for you. I hope you get things sorted and everything settles down. wishing you all the best my friend. sending you a hug x

Sorry you're having problems. I haven't had any UTIs since the op but I have followed a strict regime of drinking 2+ ltrs of water daily, plus morning black teas and a latte, washing my hands before touching the bag spout and, recently, making sure to wash the nightbag with soapy water every morning. 

I have no idea if all that is helping to keep infection away but I hope it is. Your symptoms sound very uncomfortable and I hope they get on top of it soon.

All the best,

Latestart

Hi Leo , sorry to hear that . I had one a month after the operation . Kept in overnight , high temperature etc but since then been ok . 

After my RC I was recalled to hospital for a urethrectomy because biopsies showed cancer cells at the margins of my urethra. Pre operative checks for this further operation revealed I had a UTI. I had no symptoms whatsoever and therefore no Idea how long the infection had been around. A year on all checks have been clear and no further UTI’s 

The only thing I can say is that after discussing with my stoma nurse I’m now very careful with handwashing when handling/changing bags and alway give night bags a good wash through with warm soapy water each morning. I also have a small daily glass of cranberry juice that I read has good effect at keeping UTI’s at bay.

Hi Leo

Sorry to hear this isn’t resolving. I had a Radical Cystectomy last September (similar time as yourself). I was on a great upward recovery trajectory until around 3 months in when I started to suffer with recurrent UTI’s. GP visits (interestingly the urine testing strips will always give an abnormal result due to the new plumbing) led to 3 courses of antibiotics (which helped for a couple of days, but then symptoms recurred) & a referral back to my consultant.

A CT scan revealed a stricture (blockage) in my left ureter to be causing the recurrent infections. We learned this was most likely due to inflammation and scarring & was causing recurrent kidney infections. (My other ureter is going to be monitored as this is only slightly restricted.) I had a nephrostomy at hospital and a stent put into the ureter at the same time. Basically a catheter-type tube that runs from my left kidney out to my stoma into my Urostomy bag. This tube requires exchanging every 3 months @ BRi - had first exchange performed already & no infections since February! 

I’m sure you’ve already had a CT scan to rule this out, but just thought I would mention it.

Best wishes 

Gareth

Hi Gareth, thanks for the info. Yes I have had CT scans, a loopogram, etc no problems with the plumbing. I do have a hernia - which my nurse tell me is very likely causing UTIs . Hoping to getting it addressed soon.