Not the diagnosis I'd hoped for, but onward we go

Hi Mark,Sorry to hear this.I hope something can be done to help.Best wishes for your appointments.Jane x

Hi Mark,

Sorry to hear about the reoccurrence.

Hope you get some treatment options soon.

Take care.

Trevor 

Hello Mark, not the news you were hoping for. I’m pleased you have the options to consider going forward. Good luck whatever decisions you make. Garviv

Hi mark, really sorry you had a recurrence. All the very best with whatever treatment options you decide on in the future. In the mean time rest up, drink plenty and be kind to yourself. You have been through a tough time and need lots of tlc . Take care x

Hi Mark, I'm so sorry to hear that BCG hasn't worked for you and I hope you can find a treatment plan that you are OK with.

Sending you a hug, love Ade xx

You sound pretty pragmatic about it, and open to considering options. Hopefully you will be given enough time to consider any choices and make a decision. Be sure to ask pros and cons, risks & benefits, which offers best chance of cure etc. Best wishes.

Hi Mark

Really sorry to hear that and hope you can find another treatment route so that you can move forward.  

best

Rob

Thank you, my friends, for the kind words and encouragement.
I see the next specialist April 8 and will start to chart a course after that meeting.
Personally, I'd greatly prefer trying chemo &/or radiation over an immediate radical cystectomy  but I understand that may not be possible ... much info to gather and process yet.
Working on wrapping my head around the idea of an RC, should that be deemed necessary.
I think I'm doing fine with the big picture to date.
Tremendously appreciate this forum and you all. Never knew I'd be so fond of a bunch of folk from the UK!

Well done for hanging in there , i have to have the cystectomy there are no options , but to be honest I'd rather have that evil disease out my body at whatever the cost . Your doing great and options are always good , keep strong and keep posting xx

Hi MarkinUS,

Many of us have had the RC - in my case no option. In fact I'm like Podperson, wanted it all out PDQ and have never looked back. 

I was watching to some woman on a webinar the other day who climbs mountains and another who runs marathons even after an RC - they looked extremely fit (in their 50s).

I'm older than that but am working to get back to my earlier fitness now. And whatever you choose, maintaining a strong core is key to recovery so they say. I've been working on that since my robotic RC in January 2023

All the best,

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