Palliative Care for Bladder Cancer

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My partners Cancer returned a 3rd time, and we are not at cycle 6 of chemotherapy, as this is all that can be offered. this will hopefully slow the onset of the aggeressive cancer, which has already escaped the bladder and his lymph and is travelling up his back. i am his partner of 47+ years and guide him through treatments/ attend appointments/help manage with life etc.

i am also managing my own treatment of breast cancer following the major treatments, ie surgery, chemo and radiotherapy, ie long term drugs.

Its getting difficult... because he almost doesn't or cant accept the importance of having to inform the doctor of all and any minor bleeds.

I'm concerned some days he may not be fully concentrating when driving, taking risks. i drive some days but he likes driving and insists on doing so.

He became nauseous after a morning bath - i'd suggested for safety best to have at night, rather than in the morning... but and then he fainted and fell onto me and the pavement. i put him in recovery position, but was frightened... I'm not sure how to move forward, i don't want to begin nagging as i've seen others, but struggle to find the right way of guiding him, any suggestions.

I'm exhausted, and we had an incident at work yesterday of which i've literraly just discovered, my friends horse had to be put down due to twisted gut.

I'm struggling with technology, the ilogic of it, neither of us having a smart phone,..why is everything so complicated... how do we pick up...

  • Dear Yav, that is such a helpful explanation, please thank your sister!

    Denby

  • Sadly break are not for a couple of months, need to get chemo out of the way. But last bloods showed a drop in Platelets, I guess. I ony found out after the fact that there had been some small bleeds, it took 3 days for me to glean the conversation he'd had with the consultant, by phone and i worked out the facts based on the change in medication.

    Why are men so secretive. I understand he's afraid of mentioning anything to the Christie team for fear of being admitted or having to go to A + E, and I keep trying to explain quicker feedback, enables medication to be altered sooner and then none of the awful side effects or as in his case at the moment, lymphangitis in his right ankle and the inability to walk. 
    From the drop in Fragmin injection dosage, he's now been given, the pain will soon improves along with his platelet count. [as it did on a previous occasion] i just need to arrange a chat with Doppler nurse regarding having Compression socks prescribed to aid with this. Good job  my friend is a TVN and works at the clinic where they do dopplers. Just need to run it by the consultant next week.

    At least i got most of the house jobs done yesterday, and the bins aren't full enough to entail putting out and then in!

    His car going in tomoz, so a little outing.

    i do miss having his input re my car, yesterday there was an issue with my tyre pressure, and i just broke down and cried, because, first i couldn't locate the pressure gauge, and 2nd this is something he likes to do for me, whilst i'm not supposed to be pumping them up - pending shoulder surgery. Then after i long weep i drove to my garage and they kindly sorted it for me.

    They know the score with the pair of us, and its to the same garage we are taking his car tomoz.

    but thanks for you input, winders 60 its well received.

    yavapi x