I have been to see my surgeon & have been told that to only thing to be done is to remove the lot. That means having a stoma and bag. Would be grateful to anyone who has gone though this to comment on this experience.
Yes my hospital is 40 miles away too hour and a half by train. My wife insisted that she will come & see me & my will be taking me home. It's good to have family on your side.
Sounds great, and similar to what I was doing. So I'm sure you'll manage the op OK. I'm impressed the stoma nurse has given you others too. It took me a while to feel confident with core exercises and pelvic floor post op but am working hard on them now. If you ever get a chance there's something called egym where you do a resistance work circuit against machines - my gym has them and I used to love those exercises but have had to stop because of a weakness they've found in one of my blood vessels.
I’m glad you will have your wife visiting.My sister managed to get lost on the way to see me so it was a short visit ! My partner took me in on surgery day but he couldn’t visit as he was in hospital himself.
Goodness, I'd forgotten much of that. Though not the 2am wake up call, such a pain and made worse by the blood thinners they injected at the same time. (I'd had a clot that delayed my op so I'd been injecting myself for a month to break it down but I was a bit more gentle than the night staff). Happy days.
My husband visited once - the ICU just after I came round - where he had a heart attack with all the strain of the op and the run up to it (because they refused to operate on me at all for a few weeks until the clot dissolved). So my poor daughter and her husband shuttled between us in different buildings of the same hospital for 10 days until after my husband had his bypass. Fortunately they live close by. Not a time any of us will forget, though we're all fit and well now
Yes it was, though worst for my poor daughter and son-in-law. She thought she might lose both parents almost together. We"d expected he'd be my carer so when I left hospital I went to them for a week and we all came home when he left hospital. They stayed 2 months. I regained my strength helping look after him - we have lots of stairs. Open heart surgery is more exhausting than having a stoma. It brought us all much closer though.
I’m so glad you all got through it.I remember how stressful it was when my partner’s dad was in hospital and my mum was in the ward above.I had mum back home 8 months after my cystectomy but it was hard work looking her.
