Treatment Help Needed - blood urine

Hello Kl19 and welcome to the group although sorry to hear your grandad is in a lot of discomfort. Occasional blood with bc is common, but regular significant blood needs to be investigated and if he is in A+E at the moment, probably the best place to be as he should get medical intervention. Away from the hospital, does your grandad have a CNS. This is a dedicated nurse he can call for help and information ? Best wishes.

Hi Kl19

Welcome to the forum. We are a friendly bunch and there are lots of people who will be able to advise you. I'm so sorry that your Grandad is suffering. It is very hard to see someone you love be so unwell.

I hope that A&E give you some answers. Otherwise get in touch with his Cancer Nurse Specialist.

Sending you an your family love and hugs, Ade xx

Thanks Rily

My grandad will have a CNS I’ll ask him to reach out I think that in the moment they panic and don’t know who to contact. He’s been messed about a lot recently being sent home from A&E and told it’s normal but then when seen by his consultant he was shocked by how he had been treated. Hopefully it’s investigated properly this time round. 

Thanks Ade I’ll make sure he reaches out to his CNS.

Hi Kl19 . The CNS is usually the best person to talk to and with your grandad's permission, you could call on his behalf to find out what is happening with his treatment. You may also find it helpful to call the Mac support line on 0800 808 0000 (8-8 pm, 7 days a week). You would find them very helpful. Best wishes.

Hello KI19, as previous replies have indicated, blood loss, although common with bladder cancer, is not something that can be ignored if it persists. Normally, A&E or a GP will keep an eye on things, looking in particular at accompanying symptoms such as poor stamina, racing pulse, headaches and general fatigue, these being some of the symptoms of anaemia which can result from blood loss. If this is suspected by the doctors examining your grandad it is fairly typical initially for a blood sample to be taken before other treatment is considered. 'Other treatment' could be medication or blood transfusions. The snag with also having DVT is that if he is receiving blood thinning/anti-coagulation drugs to treat that condition, it could risk making his blood loss more severe. From my own experience (which may not be typical), I lost blood into urine for several weeks before blood transfusions were required. My GP and A&E took blood tests and only intervened with treatment when certain levels became very low. This happened over many months in 2017/18. 22 units (blood) were required over that time to ensure I was fit enough to have radiotherapy then two TURBTs. I still leak blood quite often into my urethral catheter and bag but the actual quantity of blood lost is probably much less than if I was a regular blood donor, so not actually a medical risk. Still alarming though! Best wishes to you and your grandad and I hope that some of the suggestions given by other replies will give you more information and suitable treatment your independent elder.