Hello. This is my first post here. Following a month of blood in urine, my husband has had tests (blood tests,CT scan and cystoscopy a couple of days ago). He was told a couple of days ago, that the cystoscopy has shown a solid 3 cm lesion arising from behind the intra ureteric bar extending into the bladder, plus multiple small papillary lesions on left lateral wall, with the appearance of bladder TCC.
He has to have the larger tumour removed (in the next 10 days) and will have a CT scan early next week to check for spread.
This has of course come as a shock (as I appreciate most will feel in this situation). My husband turned 60 a few weeks ago. He was also diagnosed with young onset Alzheimer’s last October.
We cannot have the same in-depth conversations that we once had. I am just trying to get my head around what to expect over the coming weeks (I know that this is probably impossible to say).
I would appreciate any shared experiences from similar situations please. I have to take the lead for us but I am not entirely sure (apart from Google), what to expect.
Thank you x
Hello Firefly and welcome to the group although sorry hear about your husband. Bladder cancer is far more common as you may imagine and be aware that bladder cancer can be treated successfully. There are many of us here to tell the tale. The procedure your husband is likely having is called a TURBT (trans urethral resection of bladder tumour). It sounds worse than it is. Usually done in day surgery under GA, but prepare for an overnight just in case. Biopsies will be taken and the results determine the next step. There is usually a few weeks wait for results. The body CT scan is to rule anything else out and is routine practice. Lots of help and advice here so feel free to ask anything. Best wishes.
Hi Firefly . We know it's hard not to Google but we try and steer people away from it as there is a lot of out of date and incorrect information out there. Stick with reputable sites such as MacMillan Bladder Cancer (link). Early days yet, so try not to get too far ahead. This is a one step at a time procedure. Best wishes.
rily's post has covered the main routine aspects. Many of us on here have been through these procedures, usually while frantically trying to get up to speed with this new, unwelcome intruder after the initial diagnosis. Macmillan produce free booklets which give a drama free, informative description of bladder cancer and its possible treatment paths. I found it to be very useful. On the forum we generally advise people to use google very sparingly because, particularly in the early stages after diagnosis, it can increase one's already heightened alarm to unhelpful levels. My diagnosis was in mid 2017. Tumour was 7cm. Radiotherapy destroyed 95% of it that year and two TURBTs a few months later quelled most of the remaining symptoms to the extent that palliative care as and when required has managed any that return so that a reasonable quality of life can be maintained. Treatment paths will vary from patient to patient and hospitals do not necessarily adopt identical strategies, so there is no single answer to what will happen next. After a TURBT it is quite common to have a Foley urethral catheter for a shortish while, depending on many factors such as post operative bleeding or tenderness. Most patients who show good recovery will have a TWOC (Trial WithOut Catheter) as soon as possible if they've had to have one. It is simply a test to make sure that the bladder can empty adequately with reasonable control after removal of the catheter. Best wishes to you and your husband and welcome to the forum.
Thank you so much for the welcome and well wishes RayMK . I am sorry to hear about your own experience with this, glad though that you refer to having a reasonable quality of life in the midst of this.
I have only just thought to look up Macmillan tonight and I am pleased to have found this forum. I will definitely have a look at the reading resources available through them. Your reply is helpful - thank you.
Best wishes to you.
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