Hello all you lovely people ️
Today I had BCG number 9, so first maintenance round finished - WOOHOO!! My lovely Nurse, Ann , is wonderful and has supported me and lovely Hubby amazingly. I cried this morning once it was done. It is such a difficult journey that we are on and I thank God, and the NHS, that I can rely on seeing Ann at each appointment. I never imagined that I would be living this strange life of constant Hospital appointments and I have to admit that it is testing me. I'm having some counselling (through Bupa and Macmillan Cancer Support) and we have come to the conclusion that I struggle with loss of control of my life. Does anyone else feel like this?
I've got my PDD scan booked for 14th November under GA so if anything suspicious is seen biopsies can be taken during the procedure. Then onto maintenance round number 2 with BCG numbers 10, 11 and 12, then I'm halfway through the schedule. Trying very hard to stay in a positive mindset.
Sending love and positivity to everyone.
Love Ade ️ xx
I agree that you could look into it BB, this is hard enough without having to worry about work . I hope your job will be understanding
Much love Angela x
Hi Ade, just logged on for first time in a while, good to have a break sometimes, helps me deal with it all mentally, am so pleased for you, and it does help if you have continuity with staff.
Well done also for reaching out for support, it just helps to process things, as we all know how traumatic a cancer diagnosis can be.
take care of yourself
Annie xx
Hi BB,
️ I'm hoping that I begin to feel more settled when the first 12 BCG are done and I moved to 6 monthly treatment and cystoscopies.
I'll have to stay positive with all the good wishes from you and the group. I'm very grateful to be a part of this community.
Love Ade ️ xx
Hi Trevor, yes it's definitely a strange life we're living. I had only ever been in hospital to have my babies before this. Now this year I will have had 4 General anaesthetics in 9 months, and numerous other hospital visits. As I work at my Hospital, I had never pictured myself as a patient only ever as Staff in my Lab coat .Now I wonder if I will go back??
Thanks for all your support.
Love Ade xx
Hi Angela.
I hope you are feeling better now after your pants off day. This one has caused me quite a lot of bladder pain so I'm glad it's my last one for a while
. We took the dog for a lovely walk round Trentham Gardens and treated myself to a caramel muffin
yum!!
I find it a struggle to be out of my comfort zone at the moment and I feel that anything new or different is not possible as it makes me very anxious. I have always been a home bird but now more than ever. So for now I'm enjoying my usual haunts, home, family and fur baby cuddles.
Thank you for your support and wise words.
Love Ade xx
Thanks Ste, it really is a gruelling journey that we're on!
Love Ade xx
Hi Annie,
I've just re-read your profile. I'm was happy to read that your cystoscopy in August was clear, sending you good wishes for the November one too
I think the mental stress of this diagnosis is as bad as the physical aspects which is why I decided on counselling, also my youngest son is a counsellor so I did have encouragement from him .
Sending you love and hugs, Ade xx
Hi Ade, thankyou, it is definitely getting better today. Your trip to Trentham sounds like a lovely treat, especially the fur baby cuddles , actually the caramel muffin sounds delicious too haha.
I imagine that since we have been diagnosed there is always a part of us that is on high alert , creating a background anxiety. I suppose its the initial shock of the diagnosis that starts the anxiety and then not feeling like we are in control anymore , keeps it going. I dont know Ade I am just waffling now lol! I should go to sleep , but i cant switch my brain off today .
I hope your bladder pain eases Ade . Night Night
Much love Angela x
Goodnight Angela, hope you get some sleep. Seems you are a night owl too, like myself and winkers60 (Jane)
Love Ade xx
Morning Ade, well done on finishing the first round of maintenance.. your not wrong about it being a difficult journey…
im having a very testing time at the moment, but the support of you and everyone else on here is pulling me through…
so thank you and well done..
Nigel xx
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