Started maintenance BCG today

Hi Frank123, I was the same as you T1G3 with CIS, I have had red patches twice now, both times all clear , just BCG inflammation. I am on number 11 BCG tomorrow. It is a huge relief when it comes back all clear. Good luck with your biopsy in november. Have a look at my profile ,I have put my experience to date to give folk an idea of what can occur. 

Hi Ade, hows the “pants off club “ today? I hope its ok for you and reactions are kind. Its the 6 hours of stinging thats toe curling for me, I was a little bit fluey after last weeks , and the fatigue i find hard frustrating ,but a small price to pay isnt it . keep in touch. I am off to shops now.

Hi Angela

"Pants Off Club" went fine this morning, all thanks to lovely Ann my BCG Nurse. It was a bit stingy going in but ok Just got home and waiting my 2 hours before commencing the bleaching  Hoping that the stinging as it comes out is OK too. You are quite right, it is a small price to pay if it means we can preserve our bladders! I'm keeping everything crossed that it works for you, me and everyone else on BCG on the forum.

Enjoy your shopping trip.

Love Ade ️ xx

Hi Frank123

Good to hear that your maintenance BCG has gone well for you. It does take physical and mental stamina to cope with this therapy, but I just can not contemplate a Cystectomy, so fingers crossed for all of us on BCG that it works for us.

Sending you hugs and positive vibes ️ for a clear result in November.

Love Ade xx

Hi Ade,Glad it went well today.Love Jane xx

Hello Ade, love yours and Angela’s “ pants off club” so pleased everything went well for you. I  also endorse the preserve the bladder mantra. Keep well. Ggarviv

Thanks Jane, only 1 more to go in this round! Woohoo!!  

Love Ade xx

Hi Garviv.

"Pants off Club" came about because Im trying to maintain my sense of humour throughout this weird journey!  

I think #Preserve the bladder# may be my new hashtag  ️ 

Love Ade xx

Yes, yes, Garviv