BCG bad reaction

Hi Coleric, welcome to the forum. I am sorry to hear you had a bad reaction to BCG. Can you say what kind of reaction? What happened ?There are many of us on here at the moment having BCG , with varying reactions or side effects. I have had 6 and am doing ok on it. I am sure others  will be along soon with their experiences. This is a wonderful group forum , where there is lots of help and support to hold you steady through this journey. Take care

much love Angela 

Hi Coleric,Welcome to the group.I think you will find it helpful and supportive.I’m sorry you had a bad reaction to the bcg.There are several people here who have experience of this treatment and can help.I’m not much use as only had surgery.Love Jane x

Hi Coleric. There are many of us here that are going through BCG treatment, and the reactions vary for each instillation for each of us. Depends what reaction you are taking about (there are a few), byt for me:

1-4 Mild fever

5  Knocked me out with sweats and chills for several days

6 No reaction

7 Jelly like (heavy fraction) on going to loo - was told this was the epithelium sloughing off

8 No reaction

9 No reaction

With all, the frequent visits to the loo after the 2 hours for ~ 1 day is tiring, but it seems to be doing its job.

Wishing you well.

Hi Tortoise  It was long term effects that I was really wanting to know about. I'm clear of cancer but am one of the few who has problems with bcg after 3 years. 

Thanks winkers60 hopefully I'll get some info from one of those who have had problems.

Thanks Angela. BCG has proved to be a very effective weapon against the cancer coming back. Im one of the very rare cases whose had long term problems.

Hello Coleric. 
I was diagnosed a year ago and have now completed the 3, 1st. Maintenance Course of therapy. I'm going through a lot of pain inc. dysuria at present. 
Is it possible to know the problems you are encountering and have they been continuing for the last 3 years? 
would be nice to know so I can brace myself for the coming future. 
thks 

It would be most helpful if you could describe the type of problem that you are having so others may feed back. You have not really provided enough information yet

Yes I did but probably not the BCG treatment entirely. Had 12 treatments then after the 12th developed UTI sepsis and was rushed into hospital.

1. Hi Im so sorry you had to go through that, I hope you don't mind me asking this:

A few months ago my grandad had his 7th installation of BCG 14 days after a biopsy he went in for the treatment the same as he would any other time but when he came back out he complained that the nurse really hurt him he could not hold in his pee and had to go straight away he then turned unwell very quickly, 

• Feeling sick 
• Having rapid drops and highs in temperature 
• Severe shaking 
• Colour changing 
• Really bad groin pain 

He got rushed into hospital they didn't suspect sepsis or anything untill 3 hours later by then he was in such a bad state he passed away around two months later while being in ICU,,  I was wondering if you thought your UTI sepsis was from the BCG ?? We feel that the BCG had a definite affect on my grandad but the hospital are having none of it,

I was wondering if you could help me and maybe explain your situation and how it developed into sepsis of course you don't have I understand it is a sensitive topic xx

we are trying to understand what happened to my grandad as even doctors don't know I'm just trying to get all the information I can find, many thanks xx