TURBT the wait

Hi Leo1 that is great news and must be a relief to you. 
the awful thing about all this worrying is it is really draining and feels like a huge weight to carry round. The reality is i suppose, the worry doesn't change the result. I keep saying to myself, ‘ thoughts aren't facts Angela’ it helps a little. 
please god we both get good news soon

much love Angela x

Cheers Jane - just the histology now. Results are taking longer than usual. Hopefully hear from MDT and consultant this week or next.

Well histology is in, MDT meeting tomorrow, and should hear about treatment options next week. 

Hi Leo1 , I had my results today showing atypical cells. She said it was not a recurrence of bladder tumour. Cried with relief. 
Will you be at the MDT meeting? 
I recall my 1st turbt, after the original diagnosis , but not graded, i felt fit to burst with worry. Everyone on here said i would feel more settled once I knew what i was up against and what the treatment plan was. They were right. 
I wish you good luck and a good nights sleep. Fingers crossed you get a good result.

much love Angela x

Do you think the 2nd TURBT will be easier than the 1st. Taking biopsies , checking margins of would from first TURBT if required, zapping anything else. 7 weeks from last one. Cheers Leo

Hi Leo1 , i had no issues following the first turbt, drank plenty and it was stinging for a few hours but i expected that. My 2nd one to confirm the grading was just the same , I had no issues. I was awake during the surgery, had a spinal anaesthetic, so was able to chat to the consultant. As he finished the op he said , “in my experience that looks fine , original staging stands, of course we will wait for histology , but i think its good to go to bcg therapy, see you in 2 weeks for a chat “ and that was me coming down off the ceiling and relaxing knowing it wasnt muscle invasive. 
Did you have pain and issues after the first one Leo ?

much love Angela x

Thank you for your reply Angela, I had no pain only a little discomfort my problem started after the catheter was removed I managed to pass urine twice with no problem then nothing just the constant feeling of needing to go after a while they put a catheter in again and I was allowed home thats when I had problem with leaking and very unfomfortable feeling when sitting,

Sorry think I am replying to the wrong post x

Hi GrannyM

Sorry to hear that. I do feel like I was lucky having heard a few stories of folk having problems post turbt. I hope yours are resolved now. I dont know what your diagnosis is Granny M or when you had surgery,

my story is in my profile if you want to check it out.

Have no idea how to post my story is it in my profile ?