Just diagnosed, feel lost

Hi Blondy, welcome to this very helpful group, others on here are much more experienced and I am sure will respond very quickly. I myself have only been diagnosed one a year but was in complete shock like we all are when we get this diagnosis. This group can help give support and sometimes guidance, which really helps in these early days. There will be people on here that have had bladder removal and others opted for other treatments. I am having a treatment called Bcg. I have had two turbts and they are not as bad as you think. Hang on in there and I am sure the regulars will respond to you and they have been around on this blog for a long time, they are very helpful with advice and reassurance. 

Hi Blondy and a welcome from me although sorry to hear your news. You are in good company here as many of us have been through this and know how you must be feeling. The early days of uncertainty and not knowing can be very stressful. It takes a couple of weeks following a TURBT to get results and a full diagnosis. The results of the biopsies will determine the next step. Not sure how they have given you a staging as you don't usually get this until the biopsies are done. Feel free to ask any questions. Lots of experience here. Best wishes.

Hi Blondy and welcome to the group

I had surgery this year with stage 3 invasive bladder cancer, I did not know what stage the cancer was at till after the biopsy which I waited 5 weeks for the results

Its a very emotional time and you will need family support, If there is any advice I can give you I will be more than happy to help 

Best Wishes Anya 

Hi Blondy,Welcome to our friendly group.Once your TURBT results are back you will be given an appointment with a consultant to discuss treatment.I had muscle invasive and saw a surgeon oncologist about 6 weeks after diagnosis.It’s usual to feel lost at the start but stay on here and we will all try to support you.People tend to feel better emotionally once they have a treatment plan.Take it a step at a time.I hope you find it helpful here.Love and best wishes Jane 

Thanks for replying, it’s a tough time for all of us. Can I ask you how long you were in hospital for your TURBT I have my op in the afternoon so def be one night. Just wondering cus I’m booked in a hospital 1hr away from home because it’s urgent.

I haven’t a clue, I thought the staging was what sort of cancer cells they find and how fast they grow. The results I have so far are just from CT Scan report

Hi Blondy . Most people are out in under 24 hours, but it depends on how deep they go. Mine was very deep in to the muscle and I was in for four days, but was up and walking about the ward on day 2 with a catheter in. Best wishes.

I can’t believe you had to wait 5 weeks for results that’s crazy. Have you had you bladder removed? Sorry for personal question, I feel like I’m gathering as much information as I can thanks for chatting 

Thanks for that, mine is in the muscle too, I was told my tumour was 4.5cm not really sure that means much, but at least that gives me an idea thanks. I hope you are doing ok

Thankyou, I think once you’ve had a diagnosis, I just want to get things going. Your right I’ll feel better when I’ve got a plan, at the moment I feel like I’m in no-man’s land. Trying to stay positive. Hope your doing ok on your cancer journey