HIVEC Heated Mitomycin

I have managed to keep working since being diagnosed last July 2022. I had to have time off for the turbts. With the bcg I normally work from home the day after and rest up as much as I can, normally feel bit tired then back to work. Its an admin role so not strenuous. That's how it's been for 9 Bcg treatment and three mitomycin. Hope the next three go as well this month. Not looking forward to it again but I know I need to have it to try and keep the cancer returning. 

Absolutely right !! Not tight, my chubby fingers 

Hi Yavapi, the waiting is quite awful at times isnt it. Its not knowing whats going to happen . I can go from optimism to feeling down in a heartbeat somedays. Luckily those down days are fewer and in between I am taking one day at a time. I remind myself that I have been given today and it is a gift to treasure. I try to keep busy mentally, ( physically can be tricky somedays) planning stuff, doing crosswords, reading, music and even video games. I treat myself to  the football . I dont have bladder problems in that I dont get urgency or leakage so somedays I actually forget for a few hours that i was ever diagnosed and that is bliss . One day at a time is my mantra and I hope your partners treatment goes ahead and works well. 
much love to you Angela x

Goodluck with the next 3 Bumblebee 49.

Hope it goes well for you, keep me posted.

much love Angela xx

Will do good luck to you too. Have you already had the Bcg and now being offered the heated mitomycin? 

I have just read your profile and realised you have recently had the bcg in August. Did you have the 6 induction. 

Hi, I had the first of the induction and then caught covid which on top of having long covid left me feeling total fatigue. It took 3 weeks to feel like I was beginning to recover. My urology nurscided it may be too risky to start bcg again as my immune system was getting a battering . They just decided that the flexi cystoscopy was the best next step and depending on what they find, any tpy would be the mitomycin. The flexi is on Oct 24th so fingers crossed there has been no recurrence  

Its good to talk , thanks bumblebee 49 x

Are you feeling any better Angela ? What a rough time you have been having,I feel for you.Love Jane xx

Hi Jane, it has been really tough over the past few weeks. The long covid symptoms are all back again ! I am heartbroken over the loss of my beautiful dog Izzy, she was such a joy in our lives and the house feels so different without her.

I think the nurse is right about giving the bcg a miss. I hope all of this is going to be temporary . Just to be getting some treatment would ease my mind of worry, but I am daily practising one day at a time and seeing each day as a new chance .

How are you Jane ? I know the house is on the market and you are busy , but how are you in yourself ? 
much love to you xx

I have no idea how all of those praying hands got into this posting hahaha spooky .