Hi all, I am due to have my first BCG session tomorrow and I seem to have developed a real anxiety over it being a live bacteria . I think its probably due to the fact my family are working from home and we have only one loo which is in the bathroom. I have got myself in a huge pickle about cleaning and bleaching and trying to protect them from the live bacteria !! I know its irrational and a bit catastrophic thinking. Just wondering have any of you gone to extra lengths cleaning and had the same concerns ? Sometimes the whole cancer thing becomes so real and flashes up in neon lights , its messing with my thinking . Thanks for listening , I do feel safe expressing my fears to you all and its wonderful to know that you are there . Much love Angela x
Hi Angela, I’m so glad everything went ok, my husband had BCG, all the nurses were very kind and thoughtful. It is a bit of a “faff” with the precautions afterwards but it’s not for long and understandable with the treatment. Hope all goes ok and you keep well. Jean.
Hi Jean, thanks so much for your encouraging words. Yes its defo a bit of a faff ! I do feel better having done the 1st one, had a real wobble this morning before it. Wont be afraid next week now. Feel a little bit flu like but nothing bothersome. Best wishes to you Jean . Angela xx
Much love Angela x
The first time of anything is always hard, you really don’t know what to expect, even though you may know what’s going to happen, my husband really had no after effects from the BCG, a few ups and downs but in no way was it as bad as we thought it would be, he’s finished his treatment plan and it’s now down to flexible cystoscopy’s to check no recurrence of cancer.
Hi Jane , to be honest, not bad at all. I have slept a lot , but as for other reactions like bladder urgency , temp and pain , I haven't had any of that. I feel optimistic today and glad that one is over with. It would have been harder to get through without you all . How are you keeping ?
Much love Angela x
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