My husband was diagnoised yesterday. I'm in a turmoil. We haven't told anyone else yet but must tell our 33 year old son tonight. I am an emotinal person byt must try and stay positive. Any tips would be welcome.
I was diagnosed in Jan of this year,, such a shock, I had the tumours all removed end of Feb with no further treatment and today I had my 3 month camera check and still all clear
I will be checked again in 9 months but as of now I am cancer free, I understand it is very scary but until he has biopsies you won't know the type and stage of the cancer. BC is very treatable now days, love to you all, Tina x
Hi Tina I am so grateful for your words. The shock has knocked me sideways but reading what other people have been through helps me become a bit more positive. I didn't know it was very treatable now days - which gives me hope.
Thank you so much for taking the time to write - I've had a rather dark view of the human race of late but feel at bit more hopeful when people like you exist and wan to help people. Barbara X
Dear Jane I'm a bit overwhelmed at people like you taking the time to help me. Thank you so much - I dont' know if I could get through this without you help. Barbara x
Hi Coton, it is indeed a great shock when your husband is diagnosed with bladder cancer, my husband was diagnosed last June with high grade non muscle invasive bladder cancer, now a year on he has had 12 BCG treatments, TURBT’s, flexible cystoscopy’s etc, we are waiting for an appointment for a flexible cystoscopy following his last BCG treatment, so far (touch wood) no further cancer cells have been found, it hasn’t been a totally painless year but not as horrific as I thought it would be.
It’s not easy seeing someone you love go through this, I too am emotional and it’s sometimes very hard to stay positive but it really is the best way to be.
I know I have had good support and help from this forum and I’m sure you will also. Jean.
Thank you so much for writing. I don't know how I'd cope without comments from people like you. the tears won't stop at the moment. I'm trying to train my mind to bat away negative thoughts. One minute I feel a bit better, then next its sheer panic.
All I can say I'm so thankful, because reading your words make me feel a bit more hopeful - I can't thank you enough. I;m so glad I found this site.
Best wishes for you and your husbands future Barbara
Hi Barbara,It Is a shock and it’s just as hard for loved ones as they can feel so helpless.My partner and sister felt better for being able to go with me to appts and their support was invaluable especially as I can’t drive.How Is your husband coping ? I hope you find some comfort on this site.I joined in 2019 and have found it very helpful.Love Jane
When my husband was diagnosed we really knew nothing about bladder cancer and the treatments, when he had his first TURBT we thought it was just a cystoscopy under general anaesthetic as they wanted to see more, we didn’t realise they would remove the cancer and take biopsies with the result that it was cancer.
if there is anything you want to know or explained don’t be wary of asking, we have all been there and with all the different grades and treatment plans there is normally someone who can help.
Thank you for your wishes and I hope everything goes well for you and your husband. Jean.
Jane I intend to go appointment with my husband - I didnt go into the consultant with him because we thought it was just an infection - I waited in the cafe but when I saw his face I knew and I completely broke down in the cafe.My husband of 36 years is quiet gentle,caring person but at times he shows just how much its affecting him and he's worried about me as I"m finding difficult to cope. When I lost my parents some 30 years ago I was devastated but this week has been the worst of my life. I will keep on the site as I'm finding so many people are really wonderful and comforting. Best wishes and I hope you keep well.
Hugs,that must have been a terrible shock for you both.I’m sure you will cope it’s just all new and scary at the moment.I’m glad you are staying in this group as I think you will find it helpful and there are others in your situation so you are not on your own.Love Jane
