I had my bladder removed in March and have made a good recovery. I was diagnosed with Transitional Cell carcinoma G3pT1 and all CT scans showed the cancer was only in the bladder. My surgeon appeared very confident that removing the bladder would give me a 95% chance of being cancer free as we had caught it early. I have just had a follow up appointment with my surgeon to discuss histology results. To quote him the results were not what was expected at all. The cancer had progressed deeper into the bladder wall than initially thought and also lymph nodes. He stated that I will require further treatment possibly chemotherapy and I am waiting to see an oncologist. Has anyone else experienced this? how can they have got the original diagnosis so wrong? I know my bladder and lymph nodes have been removed and hopefully the cancer but they are obviously concerned that they may not have removed all the cancer which makes the outlook not as good.
Hi Modena20 . I did not have removal so not the best to answer. We do know that in some cases, some follow up treatment is needed. I did have chemo (Gem/Cis) and tolerated it without any problems. I hope all goes well. Best wishes.
Hi Modena20. I also had my bladder removed in March. My biopsy and scans were done in Feb. Biopsy results came back as G2 T2. However, those results are only based on the tissue they were able to access/ remove during the biopsy. Bear in mind that what they can remove during a biopsy will be limited by the size / position of the mass. In my case, they could not remove any more tissue during the biopsy as it could have created a hole in the bladder wall - a risk not worth taking. There is always a chance of a higher grade cancer not accessed during the biopsy. Once your bladder and lymph node were removed the histology is more accurate as they can section the whole bladder for analysis. I don't think they got it wrong - your first diagnosis was what they found at the time.
I hope this makes sense to you. Stay strong!
That must be a real shock for you. I was TaG3 & when I asked my surgeon if it could have already spread, he said 'unlikely'. Unfortunately there are surprises with cancer. It is not uncommon to have chemo after surgery, if they find more cancer than they had expected. Hope all goes well for you.
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