Radical cystoprostectomy

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Hello all, sorry I haven’t been on here for a while. Two weeks ago my husband had his surgery. Both bladder and prostate removed following chemotherapy for muscle invasive bladder cancer diagnosis.

He is now home after a few set backs in hospital requiring a delayed stay in HDU. He had his staples removed after ten days and the wound completely opened requiring him to go back to theatre, he also struggled to keep any food down and also had delay in his bowel working again following surgery. But now slowly but surely getting there. 
His new urinary stoma is draining well, psychologically and physically he is struggling at the moment, but hoping with time he will begin to feel more human bless him. A long road of recovery ahead, but glad surgery is now done x

  • Hi pixie27,I’m glad your husband is back home.His recovery can begin now and hopefully the setbacks are behind him.It’s not uncommon to feel low especially at the start when you tend to feel at your weakest and sickest.Wishing you both well.Love Jane xx

  • Hi,

    Been there ! Done That! -- I've been incredibly fortunate that nine years later I am still here and enjoying life - it makes all tha hassle worthwhile ! Life isn't about waiting for the Storm to pass, it's all about learning to dance through the raindrops !! keep smiling !

  • Thank you so much. So glad to hear you are doing so well.  He’s feeling a bit brighter this week. He is getting used to his new life with the urostomy bag now, and his surgical wound is healing well now.

    The hardest thing he’s had to navigate is the extreme tiredness and lack of confidence when trying to mobilise etc 

    Hes been quite down but luckily the Macmillan counsellor has been in contact to support him too. 
    I think we were not really given a lot of information of what to expect post surgery, how long recovery would be, etc what to do or not do. He just felt a bit lost and unsure, but slowly but surely he’s getting there :)