Bladder pain

Hi Jacaranda07 . Really sorry to hear you are still suffering. It must be having a real impact on your life. Really hope your GP can offer some help. Best wishes.

Thanks riley, yes the bladder becomes the focal point and your life revolves around that. The nurse said try and ignore it and get on with life, which of course I try to do as best I can but as you can imagine it's difficult to do when you know it has a mind of its own. It's like it's waiting to pounce and then it can become a psychological problem.

Apologies for the spelling of your name my phone insists on changing things at will ironically a bit like my bladder.

I’m sorry to hear you are still in pain.When I had Interstitial cystitis I found the bladder pain was far worse on non steroid anti inflammatories like Ibuprofen.I wonder whether switching to something else might help ? I hope you can get some help from the GP.Best wishes Jane 

Thanks Jane, I think you are probably right about Ibuprofen. I do tend to shy away from it if I can, I know it's not good for either the kidneys or liver. I'm hoping the GP can come up with something that will be effective. Can I ask did you try amitriptyline and if so did it have any effect on the pain?

Take care Chris 

Hi Chris,I never tried Amitriptyline though I have been given some to try for nerve  root pain from arthritis.I’m not a great fan of medication but perhaps I should give it a try.I feel for you bladder pain is draining and miserable.Did you try acupuncture ? I found that really helpful.Jane 

No I'm like you always sceptical of drugs, I have this fixed mental thought that they can do more harm than good. Having said that I had 6 months of chemo for my bowel cancer and that saved my life although it did leave it's mark with peripheral neuropathy.

I have given thought to acupuncture it's just finding the right practice.

Yes it’s important to find a good practitioner.It’s a shame you are not nearer as I could recommend the one my sister and I used.It’s worth considering.I felt better all round and it helped with sleep too.I was extremely skeptical beforehand but it was my urologist who said it might help.

I had acupuncture on my Achilles tendon after being knocked off my bike 20 years ago. The physio, who was qualified to do it, very tentatively asked me if I would consider it after his conventional treatments had hit a plateau on recovery. I said 'if you think it could help try it,' and it did shift the improvement back into gear until it was recovered. Never had any trouble with that ankle since either. The only problem I had was that although it was strictly medical and only new sterile needles were used, the blood donor people took exception. Oh well.

Hi Jacaranda07,

Bit of a late reply... I hope your cystitis is better. I have had (and hopefully it will remain in the past tense) bladder cancer and was treated with BCG. And... I have also had a fairly bad inflammation to the bladder as a side effect. I have had it now for 2 to 3 weeks... I think it's something to do with the immune system... mine is always overreacting... the only thing that seems to work for me is 2 ibuprofen + 2 paracetamol, like you say... it seems to work for one to two hours... so I take that before going out... I do really hope this inflammation will get better for all who get this side rffect...