BCG Side Effects

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Hi, I started my second course of BCG last Thursday after completing the first round in April. The first round was fairly unremarkable; I experienced the normal side effects of frequency, urgency, lethargy etc.

This time it is completely different, and I am hoping someone may have experience with this. After the 2 hours, I had trouble urinating and even after drinking copious amounts of water, I was getting an urge to go frequently but was passing very little at a time. Friday was similar. On Saturday, I seemed to improve; however, when I took my jeans off in the evening, my legs and ankles were extremely swollen and they could have been like that all day, as there was no pain or unusual sensation in my limbs. The swelling has subsided overnight, but I am really worried as to whether this could prevent me from continuing with BCG treatment

I will mention this when I attend the hospital next Thursday, but was hoping in the meantime that someone may have had a similar experience.

  • Hi Pru,

    Sorry to hear that you've been having issues with your second BCG course.

    I'm 18 BCGs in and I've not had those side effects before.

    Perhaps you can call your CNS tomorrow before your next instillation.

    Sorry for not being able to offer any real advice but wish you all the best.

    Trevor 

  • I’ve only had 6 BCG treatments but my impression is that later treatments do sometimes become more tricky it seems different for every person. Best to tell your nurse and medical people as they can hopefully help and advise. Sending caring thoughts tho x. 

  • Thank you for taking the time to reply, I will try to speak to someone tomorrow.

    Wishing you all the best

    Pru

  • Thank you for taking the time to reply , I will definitely try to speak to someone about it. 

    Good luck with your treatment and prayers that it continues to be successful x