6 weeks post op and on the mend

Hi Jenny jenlids. Good to hear you are picking up and feeling a lot better. Can't help with your night bag problem, but I am sure someone here will have an answer. Best wishes for your continued recovery. 

Hi Jenny,My stoma is on the right and I sleep on that side and it drains well into the night bag.If I turn over then I have the same problem as you and wake with a fuller bag.I’m glad you are starting to feel a bit better.I hope your infections clear up soon.The bowels seem to cause so many issues after cystectomy.I had severe constipation rather than diarrhoea.Weight loss is very common.I lost a stone in hospital and a little more at home.I was thin to start with so looked so gaunt especially in the face.Once the lockdown started I was doing less and eating more and I put on 2 stone.I’ve lost half a stone since then but don’t look fat.Hopefully you will just keep on improving and building up strength.It does take time but you’ll get there.Love Jane xx

Hi Jenny

Glad your improving and long may it continue

I have my surgery 20th this month so as many of you I will be laid up awhile

Did you have robotic or open surgery? I am down for robotic but have been told open surgery may happen if issues arise I’m hoping not but in the lap of the gods eh!!

wish you well 

Lorraine x

Thanks Jane you have been very kind and helpful xx

Hi Lorraine. I was told the same as has scar tissue from my hysterectomy but they managed robotic so that was good. Good luck and I hope all goes well for you xx

Thank you Jenlids

Ive got stoma clinic 14th, bloods 17th then I’m good to go!

I suffer badly each op with sickness regardless and recovery slow and lately blood pressure drops very low so it was suggested a tube down my throat to drip feed.  I told her not sure I like that idea

when you said the drainage got infected where is the drain situated?
Im not looking forward to my bowels being messed about as I have diverticulitis so I’m hoping it won’t kick off. Still I’m sure in the scheme of things that’s a small price to pay.

much love 

Lorraine x

The drain site was just right and down a bit from the stoma. Only got infected because the nurses missed taking out the clips so they were in far too long. 

Good luck Lorraine I am sure all will be good. Keep us updated

Jenny xx

Thank you oh just another question please did you choose which side the iliac bag sits 

Lorraine

I wasn't given a choice Lorraine so automatically thought that everyone had it on the right side 

Jenny xx

I wasn’t given a choice either Jenny.I think they are usually on the right hand side.Love Jane x