Hi All

Hi . Nice to hear you from Spain. I've not had BCG, so not the best to help. Saying that, I have been on here long enough to know that BCG treatment causes many different side effects from mild to more serious, so the symptoms you mention seem fairly common. I know hat doesn't help you much. I am sure some of our BCG members will be along to offer some help and advice. And of course, this place is more than just medical stuff, it is a place to talk and express your emotions to others who understand if you feel like. Best wishes. 

Hi Rily thanks for the quick reply, and warm welcome. It's the first time on the site, Im, not the best at putting things in writing, your support is a great help and I look forward to other replies. 

Reikigirl

Hi Reikigirl,Hi,I can’t help with the BCG but wanted to say welcome to the group.I hope you find it friendly and supportive.Best wishes Jane

thanks Jane

Hi and welcome from me too, or as you may be more used to, Hola! My OH had 6 BCG after a start much like yours. I do hope it does the trick for you, and the side effects subside.  I just want to add a twopence-worth: if the BCG does not stop the recurrences sufficiently for you [many people get them and just go on, removal, more BCG], the Mitomycin is not such a bad thing.

Mr. D had a recurrence straight after the BCG course and was offered to switch to Mitomycin. This has been really successful for him, to the extent that he is now down to checks every six months. The only struggle for him was retaining it in the bladder as his bladder was very sensitive to it, but it has worked even though he just could not keep it in for the recommended time.

Adios, Denby

Hola Denby

and thanks for the warm welcome. thank you for the information, I did not think past what happening now so good to know. I will keep that in mind.

Bye for now  Reiki girl

Hi Mr W was diagnosed 5 years ago next week He had 24 bcg treatments  in total  initially every 3 months then 6 monthly Main side effects were headaches and  24 hours painful urination At  his

 last checkup a month ago he remains cancer free after the same initial surgery as  yourself He also gone on to annual checks 

At the outset he had to choose from a range of treatment options and when he said bcg the consultant said it would be his choice in my husband's circumstances 

Best wishes as you start your journey Just wanted to share our good outcome Sure there will be others along equally positive 

Love and best wishes 

Wilbert xx