Hello.
I’ve already posted on the forum as my husband has just been diagnosed with BC. I’m now doing a bit more digging as things come to mind as it’s all been a blur
The consultant who did the cystoscopy said it was a “flat bladder cancer”. My husband then got referred to another consultant (privately) who asked him if he’d ever been to Egypt as it could be linked to a parasite - schistosoma hematoebium (we’ve travelled, and been to Egypt but have never swim anywhere remote). I’ve looked it up and, if it is that, then the BC is SCC which is fast growing and can invade the bladder muscle so bladder removal could be necessary.
Obviously, I’m now really really worried. I know I should wait until the diagnosis, but... does anyone have any experience of this BC?
Thank you so much
Hi Lavitaebella. SCC is very rare and we don't see it here very often, although we do have members with experience of it. Really strange to hear of the Egypt connection. It is always tempting to search for information, but there is a lot of misleading, incorrect and out of date info out there. Best to stick to recognised sites such as Macmillan. Mac have produced detailed info if you click HERE . Just saw your updated post. CIS is common and can be treated. Best wishes.
