Hello all Found out I had suspected intrahepatic cholangiocarcinoma in July. Tumour has taken out the left lobe of my liver and the local lymph nodes are inflamed. Big shock as no symptoms and it was found by accident. Coming to terms with it all and...
Robotic whippel surgery on 11/5/24. Stage 3 distal bile duct cancer. One hospital in New York City suggests chemo with radiation and radio therapy. A second hospital center chemo with Xeloda (capecitabine) for 6 months and an AstraZenaca Pll clinical...
Hi I was diagnosed last month, had one cycle of chemo so far. Its spread to both sections of liver so currently inoperable. I am 45 and just wondered if anyone younger here wanted to connect? Exploring lots of alternatives on the side (keto/ivermectin...
Good. evening all, I've recently had my diagnosis. It wasn't done in the best way. I had a phone call after a liver biopsy. Apologies for the phone call I'd ordinarily. prefer a face to face meeting. However, I have to tell you that the biopsy. shows...
Morning peeps recent diagnosis out the blue bile duct cancer stage 4. I’m healthy active , swim regular etc, I’m told surgery is not an option. Spread to liver and lung. Now had all scans biopsies and have a chemo plan that sounds really tough. Will be...
Hi, my fiancé (37) had blood tests and ultrasound tests when she was visting her parents in Brazil in December which showed high GammaGT and then ultrasound showed a mass in the liver. When returning we flagged this though the NHS system which got...
Hi I am new here but really keen on getting advice and or opinions. I was diagnosed with Cholangiocarcinoma in January after initial diagnosis of gallstones as I was jaundice. Sent to A&E and within 24 hours was told I had stage 4 terminal BDC, it's...
My mum has recently been diagnosed with inoperable bile duct cancer. Feels totally fine in and of herself. Starts chemo on Friday which they have told us is classed as palliative because the surgery to remove tumour is too risky so it has been deemed...
Hi everyone, My Mum was diagnosed last June with Hilar Cholangiocarcinoma and has completed 6/10 cycles of gem/cis/durv. Originally, scans showed that it had spread to a lymph but a mid treatment CT scan showed no evidence of this. Unfortunately...
Hi, I'm new to a forum of any kind! So please bare with me. My husband had 50% of his liver removed in mid September (left hemi hepatectomy) and has made a good recovery. He is a very young & active 76 year old. We felt we were very fortunate it was...
