New diagnosis, young, chemo, keto, ivermectin.

Hello TTTXXX 

I am Brian one of the Community Champions here at Macmillan. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer but by me replying it will be "bumped up" to the top of the group. There I hope it's seen and replied to by other members of the bile duct group.

Best wishes - Brian.

Hi

 my sister got diagnosed as well; both livers affected, so not operable. On chemo and immunotherapy 

Sounds very similar.  Hows she dealing / coping with the treatment? 
how old is she? 

She’s just hanging in there. She was started on gem/cis/durv, seemed to make her worse. They said she has a high burden of disease in her liver. She’s just 38

Oh gosh worse in what way? Growtth? Are rhey trying something different?  Yes my liver is rhe same.  
have u found the ammf charity yet? Theres a whole conference in may with lots of prof talking about trials etc.  you can go in person or virtually. 

Is she looking at anything else diet/alt meds/ or a change in chemo? 
so worrying for you all, its such an awful cancer

She has managed only 2 cycles of chemo with hospital admissions in between for sepsis. The inconclusive biopsy results and the lack of response to treatment are really worrying to us.

i read about ivermectin but she’s on the fence about trying it yet.

 I’ll take a look at the AMMF, thanks for that.

 Have you started on chemo yet?

I had sepsis when this started (they thiught ir was just a dodgy gallbladder and found it when trying to remove my gallbladder but had to stop). I was in hopsital for 8 days straight after rhe cancer diagnosis to get the sepsis under control) and rhat sorted that out. I had first of chemo before i left hospital and just onto second now. once rhe sepsis is sorted she will feel very different i am sure.  

what doc is she seeing where?