Hello all
Found out I had suspected intrahepatic cholangiocarcinoma in July. Tumour has taken out the left lobe of my liver and the local lymph nodes are inflamed. Big shock as no symptoms and it was found by accident. Coming to terms with it all and not yet told my young son the whole truth. Saving that for when a treatment plan is clearer.
First appointment with a HPB consultant surgeon came through quick. He explained that if liver surgery was viable I would have to be referred to a regional HPB centre. After a couple of tests, it was sent off to a regional centre who took some time to review it and then asked for a biopsy of the liver tumour and the lymph nodes before they made their decision on whether surgery was viable. I feel that perhaps the need for the biopsy straight away could have been foreseen.
Slightly concerned there could a lack of experience in relation to this type of cancer. Also that there is a bit of a disconnect if my local hospital 'owns' me as a patient but can't deliver all the treatment options and has to go out to other hospitals for these.
Not sure if anybody can relate or advise in relation to this? Can you have your entire treatment moved to just one hospital so it isn't split between different hospitals?
Thanks
