My husband has liver bile duct cancer

Hi StressedLady 

I am sorry you are going through this. I don’t have any direct experience of this but know from seeing my brother in law’s journey with pancreatic cancer that had spread into his liver that it’s a rough ride. I hope you are able to speak to his doctors to understand how they might stabilise him and make him more comfortable. I hope someone with direct experience is able to come and add something to help. Wishing you all the best. 

I'm so sorry to read this & hope that your husband's condition has improved.  I am wondering if you have looked at the AMMF charity website which specialises in this cancer.  They also have a very active and friendly Facebook page where you are more likely to find someone in the same situation.  Hoping you and your husband find the best treatment plan. x

Update on my husband, sorry I haven’t replied before now. 
he’s recovered after having the stent put in, they took another biopsy as the first one was inconclusive… and since then that came back inconclusive so a couple of weeks ago he had a endoscopy so they could have a good look and take another biopsy, we are waiting on the results of that to see if they are positive or inconclusive again! 
if they are inconclusive they said they would monitor the growth every three months, but I’m worried that it could be growing and they are not doing any treatment for it and it could get worse while we are waiting for another scan! 
im hoping it comes back and they can then decide what treatment to offer him. 
He’s completely back to normal feeling good and back at work, but part of me ( from what I have been reading ) if he doesn’t get treatment he could get really ill from this … 

I just wish they would start some treatment 

has anyone else had this happen 

Hi, I was lucky to be a patient presenter at this year’s AMMF conference.

We attended the conference for the full 3 days and met some amazing (and humble) doctors, surgeons and scientists.  The work they are doing and medicaladvances they are making is mind bogling.. For example there is a gentleman called Kevin, who presented last year (all conference presentations are on Youtube) who went for the resection but they couldn’t safely remove the tumour so after working on him for 4 hours aborted surgery.  I’m not sure why, but as someone who has had a resection this affected me deeply. 

I had assumed Kevin’s onward journey would be difficult, but after coming off stage the first person who congratulated me was Kevin.  I was just so happy to see him .. but even happier to learn that after being treated with Keytruda all his tumours have disappeared and they couldn’t find any on his last scan!

Things I took away from the conference ..: 

Try, if you can, to be seen by Professor John Bridgewater, an oncologist at UCL.  He knows everyone and everything about this disease and really is the best.

Targeted therapy has had amazing results, make sure you get tested.

And look again … I personally know someone who had always been told by her oncologist that her tumour was unresectable and always would be, but after the conference pushed to be seen by the surgeons who were presenting there and is now being considered for surgery!

You are your own best advocate … not pushing is not an option !

Hope this helps.

Thank you for this, it made good reading, I am going to look into this 

I am new here but saw this comment and I've sent an email to the Professor you've mentioned but I fear it's too late for my loved one now but hope is all I have to hold onto.