Hi, this is a bit of a long one but I’d love some advice. My dad (61) was diagnosed with bile duct cancer around 6/7 months ago. He had severe jaundice at the time and needed a stent, the first didn’t work and he was nicked during the second op which...
Excellent article in The Mail On Sunday 2nd February in their health section. I hope this is readable.
My partner (72 years old) of 26 years was diagnosed in 2021 with bile duct cancer. It was stage one. He had no symptoms at this time. His twin brother and 2 other brother had all passed away with different cancers. He asked if he could be checked as he...
Hi all, Unfortunately my beautiful Mum has been told that the Gem/Cis/Durv she’s had isn’t working anymore. She has been offered folfox and regorafenib as alternatives as 2nd and 3rd line treatments. Mum is incredibly worried about infection, has spent...
Hi everyone, in September last year I was diagnosed with Intrahepatic cholangiocarcinoma bile duct stage 1. I have had a liver resection and was told the margins were clear and I have started adjuvant chemotherapy (capecitabine) which will last 6 months...
This charity offers support & has so much excellent information. There is a recent webinar you can watch giving information about trials from an eminent consultant in this field. Choose 'Patient Support' on the home page headings and scroll down to...
This really was interesting and worth a watch (1 Hour) for anyone wanting to learn more about the trials that are available to treat Bile Duct Cancer. The webinar is available on the AMMF's charity's website under patient support/patient webinars
It’s terrifying to think about it really but after 2 CTs, 2MRIs, 2EUSs and a PET CT the primary cancer has yet to be identified and so I have had no treatment. We know it’s cancer, we know it’s spread to the peritoneum but we don’t know if it’s cholangiocarcinoma...
My husband was diagnosed very recently at 39. He goes to the gym, has an active occupation and a good diet. This is the last thing I imagined. I went through cancer myself (breast) a couple of years ago & my initial reaction to my Husband's diagnosis...
Hi everyone, I just thought I would put this out there for anyone interested. (I hope this is ok) Professor Bridgewater seems to lead the field in research for Bile Duct Cancer & new treatments, particularly molecular profiling. As all this is new...
