It’s terrifying to think about it really but after 2 CTs, 2MRIs, 2EUSs and a PET CT the primary cancer has yet to be identified and so I have had no treatment. We know it’s cancer, we know it’s spread to the peritoneum but we don’t know if it’s cholangiocarcinoma or pancreatic- say the specialists.
I do have Creon and I am on my third bile duct stent.
Anyone else been in a similar situation?
Thank you for reading x
Hi AHG
Welcome to our community though sorry to hear about what you are going through. Quite a lot of parallels with my wife's experience where she went through months of tests before they finally found her cancer.
There are cases where the primary is never found, we even have a section on the main site here. It does of course make sense to try and find the primary if possible as treatments vary.
Fingers crossed that you find an answer soon or at least a way forward.
<<hugs>>
Steve
