5:25am [started to type]
Been up all night
Head in a spin
Hardly surpising since I have a lot to be thinking about regards my treatment plan for my T2 anal cancer following my initial appointment with my oncologist on Friday afternoon. [39 hours ago] Going to be a real roller coaster ride for the next 6 months at least.
I started off by pointing out I am a theorist, I will want to research and understand process.
I already understand a lot of the / terms/ buzz words / acronyms / abbreviations / from supporting my wife sucessfully through breast cancer 11 years ago, dealing with my deceased younger brother's agressive brain cancer 18 months ago, and supporting my mum recently through the death at home of my father who had prostate cancer and Hodgkins Lymphoma.
After the inital shock of hearing my family history my oncologist knew not to bother sugar coating anything or be talking around things or waste any time having to over-explain things. She is lovely, as is her registar. Both empathetic, truthful, to the point. Which is just what I want. Just what I need. [not right for everybody though]
My full body PET-CT identified a hot-spot on one side of my prostate, for which I have already been referred to Urology, as well as a hot spot in a lung, which will be investigated with a chest CT
MRI pretreatment scoping scan will be back end of this coming week
Still recovering from my third colorectal surgery in the last 4 months. The last surgery 21 days ago removed a significantly sized polyp and its root
This all started 7 months ago with what I thought was a troublesome internal haemorrhoid and a positive FIT test . . .
Onwards . . .
Note to self: you must get your sleep pattern re-regulated
Actions required: keep a simple, factual continence diary [ I've been struggling with continence since this last op]
Hi, I was going to start with good morning then thought maybe not. I was T2 stage nearly five years ago and very much remember when my dad was diagnosed with prostate cancer which was many years ago and he survived over fifteen years having various drugs and radiotherapy to control it. But I had no experience of cancer jargon and my dad was very deaf and when he had the first course of injections (hormones I think) he was transferred to his GP surgery but my dad got a call from the doctors (my mum took the calls as he couldn’t hear on the phone) asking why he hadn’t turned up for his next injection! He thought he was cured. He didn’t know what was happening and they certainly didn’t realise that he would nod his head and not hear anything. I am profoundly deaf but the complete opposite and relied heavily on Google for information which frightened the hell out of me until I discovered this group. I too rely on written information than doctors talking and after my treatment they were still wearing face masks after Covid and what a nightmare. In some ways you are prepared and been through this awful limbo of waiting before your treatment actually starts. We do have some men who have had this cancer on this site who I hope will soon see your post. We females experience different symptoms due to anatomy of course and our tender bits get blitzed. As you are someone curious about finding out more about this cancer and effects from treatment you have come to the right place. Lots of tips on how to cope and support from us ladies and men on this site. Good luck
Julie
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