Newbie here with a T2 diagnosis

Hi, I was going to start with good morning then thought maybe not. I was T2 stage nearly five years ago and very much remember when my dad was diagnosed with prostate cancer which was many years ago and he survived over fifteen years having various drugs and radiotherapy to control it. But I had no experience of cancer jargon and my dad was very deaf and when he had the first course of injections (hormones I think) he was transferred to his GP surgery but my dad got a call from the doctors (my mum took the calls as he couldn’t hear on the phone) asking why he hadn’t turned up for his next injection! He thought he was cured. He didn’t know what was happening and they certainly didn’t realise that he would nod his head and not hear anything. I am profoundly deaf but the complete opposite and relied heavily on Google for information which frightened the hell out of me until I discovered this group. I too rely on written information than doctors talking and after my treatment they were still wearing face masks after Covid and what a nightmare. In some ways you are prepared and been through this awful limbo of waiting before your treatment actually starts. We do have some men who have had this cancer on this site who I hope will soon see your post. We females experience different symptoms due to anatomy of course and our tender bits get blitzed. As you are someone curious about finding out more about this cancer and effects from treatment you have come to the right place. Lots of tips on how to cope and support from us ladies and men on this site. Good luck

Julie

Hello Jo0Lz 

Ah, you really are facing this head on - I am really sorry to hear about your diagnosis and the possible complications.  It is always a great help when you have a good rapport with your oncologist but I can imagine that you will have quite a few sleepless nights - the chattering voices keep going all night and have no respect for the need to sleep.

I am also sorry to hear of what you have already had to deal with in your close family, but the one advantage as you say is that you are not in strange land where everyone is speaking a different language which is how some of us feel when first diagnosed.

As Jaycee says, there are quite a few men on the forum who can probably offer you a far more detailed insight into how they were personally affected by treatment.  But all this depends on your treatment path.

What I would say is keep your treating team aware of any and all problems that you may experience; hopefully your continence will improve once your body heals properly from that particular onslaught but I would tell them anyway and show them your diary.

Please keep us up-to-date with what happens next - I will be thinking of you and hoping your next meeting with the doctors goes well.

Big hug

Irene xx 

Hi Jo0Lz ,

Wow you’ve had a lot to deal with recently, now you have your own diagnosis to deal with, no wonder you’re having trouble sleeping.

It’s great that you seem to have a good rapport with both your oncologist & her registrar, this is so important in my estimation moving forward. If they both understand the way you process things, needing full disclosure & information etc., it’ll make things so much smoother moving forward. It sounds like your team are on the ball referring you for further investigations on the areas that your PET scan identified.

I don’t envy you whatsoever having had 3 colorectal surgeries, I only had 1 to remove my tumour & boy I’ve never had pain like it, the pain completely wiped me out. 

I agree trying to regulate your sleep pattern is important but equally difficult when you’ve all of this emotional turmoil & stress swimming around in your head! 

I hope you receive good news from the chest CT & from your urology referral. 

Please let us know how you’re getting along, we’re here to support you however we can.

Nicola