Hello everyone .. I’m Julie

Hello Strictlyjulieb 

A big welcome to the group, and I am so pleased to hear that you are now cancer-free and coping well with ongoing side effects.  I had a quick Google of JUDE and I am really interested if things will continue to improve with you in your bladder - says me with a yawn after so many loo visits every night interrupting sleep! 

And I don't know where you are but a late onset effects clinic sounds wonderful and something that many of us could use; I think the remit of the oncologist is to cure the cancer and they are often rather bemused once you are treated and clear and you mention side-effects at check-ups.  They are not always aware of the extent of the problems that some people have.

I am about to post an update on investigations that I have had following hip pain if you are interested!

Thank you for posting and giving such a positive view after treatment.

Irene xxx 

Hi Julie , 

i finished my treatment at a similar time to you and things looked good 

fast forward a few months and the late effects kicked in … digestive issues , radiation proctitis , insufficient fractures and nausea !!! I have seen GP’s , late effects clinic and gastro doctors but to no conclusion . I have tried diet , Ibs meds etc and sometimes my confidence has been tested when I have to cancel things.. good days , not so good days but always positive days .

I hope you get some answers 

take care 

Chrissie xx