Liver capsule pain

Hello Oakwood51 

I am so sorry to hear this and that the pain relief you have been given isn't helping.  I had to look up what your oncologist told you, and this can be caused by the liver stimulating the nerves below the diaphragm leading to referred pain in the shoulder.  After stoma surgery I had this pain too, and the surgeon explained that filling me with air to carry out the op also affected the nerves below the diaphragm.  The pain was far far worse than any of the other pain I had as a result of the surgery and I was on the same medication mix as you and they had to up the morphine.

I tell you this not to make your post about me but to send you my utmost sympathy having experienced this pain too.  In your place I would get in touch with your team and stress to them how bad this is for you; I think they urgently need to review your pain medication to get you to a more comfortable place.

Please let us know how you get on.

Gentle hug

Irene xxx

Thank you Irene. Were you on steroids too? Did the pain go eventually?

Lesley x

Hello Oakwood51 

I honestly don't know if steroids were in the cocktail of drugs that I had - maybe not, the surgery was (I am told) straightforward stoma formation.  The pain did go eventually when the gas dispersed. 

Your situation is somewhat different, please do chase your team.

Irene xx

Ok thank you. I’ll speak with them on Monday

Lesley x

 Oakwood51 

Just belatedly realised that steroids are given in cancer treatment to reduce inflammation so I hope very much that you will feel a difference before you make that call on Monday.  

I am thinking of you and hoping your pain eases up.

Irene xx

Hi Oakwood51 , firstly I’m really sorry that you’re dealing with all of this right now. There’s nothing worse than pain to drag you down. 

I agree that a call to your oncologist is in order to see if your pain relief can be managed a little better.

On the subject of steroids I had a friend that was on immunotherapy for a diagnosis of malignant melanoma, I remember she too was put on steroids to deal with inflammation & some side effects she was experiencing. 

I really hope you get some relief soon. Sending many healing thoughts your way. 

Nicola