Just starting my journey

  • 10 replies
  • 69 subscribers
  • 175 views

Just over two weeks ago I was aware of bowel cancer because of the discussions in the media and Bowel Babe but never thought about anal cancer and what that was. A FIT test, hospital referral, a colonoscopy with biopsies, a CT scan, bloods and MRI all done within two weeks and here I am facing surgery next week to see if my anal cancer can be removed or whether it has grown into the muscle of my anus.

What a start to the year! Not my plan for 2026. But my body clearly has other ideas.

They aren't entirely sure what type it is, they think it is SCC but further histology is needed as is a PET scan.

I will see how I go and I am taking one day at a time at the moment. Finding this group and starting to read the discussions has helped to process what is happening and to see everyone's story and process through this is similar but different.

I hope I may help someone by my post and thank you for the advice already here.

  • Hello  

    I am so sorry to hear of your diagnosis and that 2026 has brought you that news.  You are wise to take each day as it comes, in the early days there are so many appointments, scans, and biopsies it is such a rollercoaster.  There is a lot going on behind the scenes and once the actual treatment starts and you are on the road to being rid of this cancer, life really does start to feel more positive.

    Your treating team sound really on the ball and I do hope that you don't have to wait too long for the results and your PET scan.  I will be thinking of you next week and hoping everything goes well in surgery.

    We have all experience of what you are going through and can offer lots of tips and coping strategies, and support, too, should you need it.  So please come back and let us know how you are.

    Big hug

    Irene xx

  • Hi  Welcome to the forum although im sorry you have found yourself here. Everyone is here to support you in whatever way you need. Sending hugs. Xx

  • Thank you Irene for your kind and thoughtful reply. It is so touching that someone I don't know shows such care. I will come back and let you know how this goes x

  • Thank you Bungle1 for reading my post and taking the time to reply x

  • Hello,

    I'm only just ahead of you, having had my surgery and due to start treatment on March 2nd. I've had so much support and advice from the lovely ladies here, who have been such a help with many practical suggestions. We're all travelling together, though it's not a journey any of us signed up for. Hugs to you.

    Rainie x

  • Another warm welcome from me  . You don’t have time to get your head around your diagnosis before the ball starts tolling do you? Things happen pretty quickly thankfully & the appointments keep coming. Hopefully you hear about your PET scan & histology come around soon. 

    As Irene has said you’re in good company here, the majority of us have been where you are now so totally understand how you’re feeling, it really is a bit of a head bake isn’t it? 

    If there’s anything you think we may be able to help with please just ask, we’re here to help support you as best we can. 

    Nicola 

  • Hi Rainie, yes you are ahead of me and good to hear your treatment is due to start soon but it all sounds quite daunting but we won't be the first to be going through this and it really does help to see the advice and support on here.

    Figgywig

  • Nicola thank you for taking time to respond to me and I will ask if I need help or got questions. I think I was kidding myself that I am okay striding through this but I have been a right grumpy shopper today when out doing my errands! I think my brain is working overtime and actually I am tired taking all this in. It is a lot and we are charting the unknown.

    Figgywig

  •  Hi again   , you go ahead & be grumpy if that’s the way you’re feeling, you’ve definitely earned the right, nobody wants a cancer diagnosis but cancer in the butt??? I remember thinking what’s that all about! I thought someone was having a laugh at my expense to be honest!

    Anyhoo, a lot of it is as you say fear of the unknown, once you have your full diagnosis, a treatment plan in place & begin the treatment you’ll hopefully start to feel a little more in control again, that was certainly the case with me & with a lot of our other members too. 

    Thinking of you.

    Nicola

  • Hello Figgywig,

    Just wanted to welcome you to the forum although I’m sorry about your diagnosis. Definitely a challenging start to the year and of course it’s a lot for you to process. It sounds like your team were really proactive in getting the tests done and getting you diagnosed quickly, which isn’t always the case.

    We have all been through or are going through treatment so please don’t hesitate to ask any questions at all. This is such a wonderful forum so it’s good that you’ve found it.

    Hopefully you will get the PET scan and any other tests done quickly too and a treatment plan in place.

    Getting a cancer diagnosis brings on such a whirlwind of emotions and you are most definitely allowed to be grumpy right now. It’s allowed..

    Sending hugs xxx